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Excellent German article about the resolution, the open letter by international scientists and the open letter by German patient organizations. Science journalist Torsten Harmsen summarizes the care crisis, the decades of neglect and shines a light on advocacy, progress and recent biomedical...

Open letter from all four German patient organizations In response to the European Parliament's resolution on ME/CFS, the four German patient organizations – Deutsche Gesellschaft für ME/CFS, Fatigatio e.V., Lost Voices Stiftung and #MillionsMissing Germany – have written an open letter to the...

Thank you to everybody involved! :emoji_bouquet: Reactions from Germany so far: - No media reports so far, although press releases were sent out. - Comment by a German member of the European Parliament (posted on her website and sent out as press release)...

This was posted an hour ago. The physio account has 28.000 followers.

Many thanks to the volunteers at the European ME Coalition and everybody else involved, impressive work and cooperation! :hug: Thanks to the amazing organizing of the EMEC, today many patient organizations in Europe and the USA posted at the same time about the open letter and press release...

Videos of the talks can now be watched here: https://vimeo.com/showcase/mecfs-forum

Some links from Germany The main action was that the health minister and more politicians got postcards from pwME. There was also some great media coverage. You can find a (non exhaustive) list of media reports, videos, statements, press releases etc. at the bottom of this article by the...

As the street protests had to be cancelled, #MillionsMissing Germany announced a new action today: postcards to the Health Minister. Quick English translation: "Jens Spahn, you got mail!" | #MillionsMissing4Action ❤✊ The protests around the international ME/CFS Day on May 12 cannot take place...

All actions are canceled due to Corona. It will be a virtual protest instead.

All actions are canceled. #MillionsMissing will be virtual because of COVID-19.

Short TV report on the parliamentary expert discussion from a big public broadcaster: https://www.daserste.de/information/politik-weltgeschehen/mittagsmagazin/videos/sendung-11-3-2020-ard-mittagsmagazin-video-100.html Starts at minute 37:45.

Summary from the German Association (from the Facebook Post) automatically translated: "First parliamentary expert discussion on ME/CFS in the Bundestag On March 5, the first Parliamentary Expert Discussion on ME/CFS took place in the Bundestag: "ME/CFS Care in Germany - Using Potential...

These are the Facebook posts from the three organizers: MP Martina Stamm-Fibich, German Association for ME/CFS and #MillionsMissing Germany. (Facebook offers a "translate" option, if you click on a post.) Link to a joint press release...

It's today! First article announced the discussion yesterday: Title: "Expert discussion on ME/CFS in the Bundestag Millions of people worldwide suffer from Chronic Fatigue Syndrome Patient representative Martina Stamm-Fibich (SPD) is organizing the first expert discussion together with the...

There will also be a #MillionsMissing action in Munich. :) We are now at nine cities in Germany – three times more than in the last two years. Aachen, Berlin, Erlangen, Freiburg, Gütersloh, Halle, München, Münster and Ravensburg. If you're from Germany (or if you're not but would like to...

There will also be an action in Berlin again. :) A (hopefully big) group of pwME and supporters will form the letters SOS in front of the German Bundestag. In the last two years there was a program with speeches and music, this year it will be a "silent protest". Shoes and messages will be...

An update was posted today by the patients that organized the fundraiser:

Now at 29.375 Euro.