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The German, English and French titles are different. The German title is: "The mysterious disease – Living with ME/CFS". It has been criticized, as the disease is not mysterious but ignored and underresearched.

Here's an interview with the director of the documentary. German: https://www.mecfs.de/interview-mit-regisseurin-daniela-schmidt-langels/ Automatic English translation: https://translate.google.com/translate?sl=de&tl=en&u=https://www.mecfs.de/interview-mit-regisseurin-daniela-schmidt-langels/

The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as languages, subtitles are available in English, Italian and Spanish. It can be viewed online here and will also come to YouTube...

Might be of interest to Spanish speaking folks here: A new ME/CFS documentary, that premieres today on the German/French TV channel ARTE offers Spanish subtitles. Also available online: https://www.arte.tv/de/videos/096283-000-A/die-raetselhafte-krankheit-leben-mit-me-cfs ETA: With three...

A new ME/CFS documentary, that premieres today on the German/French TV channel ARTE has Italian subtitles. Also available online: https://www.arte.tv/de/videos/096283-000-A/die-raetselhafte-krankheit-leben-mit-me-cfs ETA: With three pwME, one pwLC and researchers Scheibenbogen, Behrends...

Just a tiny correction, it starts at 10 pm. :) *** After that, the documentation is available worldwide for 90 days on the Arte website. A trailer can already be viewed on the website: https://www.arte.tv/de/videos/096283-000-A/die-raetselhafte-krankheit-leben-mit-me-cfs/

@Wyva Just happened to see that by @Mike Harley: "If you live in Hungary with M.E and would like to tell your story, please get in touch by clicking here." http://www.mikeseumarathons.eu/hungary.html

#MillionsMissing Germany has released a trailer announcing International ME/CFS Day (with English subtitles): Press release from the German Association for ME/CFS: https://www.mecfs.de/wp-content/uploads/2021/04/210427_PM_1205.pdf

Germany #MillionsMissing Germany has organized a postcard campaign. This year, pwME and allies will send postcards to the parliaments of the 16 federal states. https://www.millionsmissing.de/mmdpostkartenaktion2021

Automatic translation:

I don't know, maybe someone else here does.

Just as background info: The IQWIG had already written a report on ME in 2008, it was online until around 2012. This is the archived version...

Yes! Very surprising that the German Federal Ministry of Education and Research mentioned ME/CFS on Twitter and Facebook. Possibly for the first time ever (on social media or anywhere else). And that they used the hashtag #MECFS. But the call for research proposals itself does not refer to...

Yes. (18 years in December)

Another German article about the resolution, the open letters by scientists and patient organizations, support by MEPs, Evelien's speech etc. - German: https://www.tagesspiegel.de/gesellschaft/chronisches-fatigue-syndrom-lichtblick-fuer-zwei-millionen-me-cfs-patienten-in-europa/25957826.html -...

Another German newspaper mentioned the study (the German Association included it in a press release): https://www.tagesspiegel.de/gesellschaft/chronisches-fatigue-syndrom-lichtblick-fuer-zwei-millionen-me-cfs-patienten-in-europa/25957826.html

A big German newspaper mentioned the DecodeME study today (translated): https://translate.google.com/translate?hl=de&sl=de&tl=en&u=https://www.berliner-zeitung.de/gesundheit-oekologie/chronische-krankheit-mecfs-betroffene-fordern-einen-runden-tisch-in-deutschland-li.89592