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  1. Joh

    Blog: "The PACE PLOS One data will not be released and the article won’t be retracted", James Coyne

    :laugh: Hopefully soon QMUL can be classified as (this is not a death tread but a metaphor :)).
  2. Joh

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    The German Association of ME/CFS shared the German translation on Facebook and Twitter and followed s4ME. :)
  3. Joh

    Jen Brea comments on Esther Crawley's behaviour

  4. Joh

    Free nasal microbiome test/study at uBiome

    As far as I know, there's no problem in the other direction.
  5. Joh

    Free nasal microbiome test/study at uBiome

    Did you have any problems with the German Zoll (customs)? I ordered another test at uBiome a few months ago, but the Zoll didn't let it through, so it was returned.
  6. Joh

    Science for ME gains its 500th member!

  7. Joh

    (Not a recommendation) Alastair Miller on CFS

    :rolleyes:
  8. Joh

    RITUXME phase III study--flow mediated dilation

    Endothelial function was one of the objective outcome measures in the RituxME trial. It was tested at baseline and then several times after Rituximab or the placebo was given. Mella talked about it during his Invest in ME presentation (available on DVD). Endothelial function in ME/CFS is listed...
  9. Joh

    Post-exertional malaise as an outcome measure in any ME/CFS trials?

    On MEPedia is a "notable studies" section on the PEM page: http://me-pedia.org/wiki/Post-exertional_malaise. But I think none of these is an interventional study, that you're looking for @Tom Kindlon?
  10. Joh

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    This is from Ron Davis' latest video (an automatic generated YouTube-transcript) on publishing the nano-needle findings: Apparently the data will soon be made accessible to researchers (according to this article (if it's ok to post an HR article here)).
  11. Joh

    Primer for family, friends and care providers - WIKIE MEpedia

  12. Joh

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    The video is now on Youtube: It's possible to comment.
  13. Joh

    Jennifer Brea interviewed on Dr Oz Show December 18, 2017

    Dr Natalie Azar was also on the Today Show with Jen and Omar and said sensible things about ME.
  14. Joh

    Primer for family, friends and care providers - WIKIE MEpedia

    Haven't linked to MEpedia to inform friends or family so far (and would need a German version) but find it extremely practical for myself. It's a quick way to find sources, links, citations, studies, info on people etc all in one place (e.g. I often use the PACE trial, exercise and PEM page)...
  15. Joh

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Can also only view 5 comments (out of 39). Just had a look at the TEDx Twitter account and it made me chuckle. Took me a while to find EC. :) https://twitter.com/TEDxBristol
  16. Joh

    B6 deficiency and intolerance

    Hi, how do you know that you have a B6 deficiency?
  17. Joh

    How to support Unrest in the Oscar race

  18. Joh

    How to support Unrest in the Oscar race

    (OT, but while I was at it, I also rated Forgotten Plague: http://www.imdb.com/title/tt4223204/?ref_=nv_sr_1 and Voices from the Shadows: http://www.imdb.com/title/tt1955051/?ref_=fn_al_tt_1)
  19. Joh

    Condition among athletes with similarities to ME?

    You're right and I maybe should have posted a time stamp for this 1 hour-long video :): The comparison starts at 6:43 min.
  20. Joh

    Condition among athletes with similarities to ME?

    Prof. Snell (Workwell Foundation) made some comparisons between the symptoms of ME and overtraining in this presentation (from 5 years ago):
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