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  1. Joh

    Academy Award Nomination Announcements; January 23, 2018

    Exactly, I hope that was just the beginning. From what I read the Unrest team has planned a lot more for the Time for Unrest campaign (including shorter clips for educational purposes). But apart from what the Unrest team is organizing I think Unrest is mostly what we make of it. It's our choice...
  2. Joh

    Academy Award Nomination Announcements; January 23, 2018

    The second part is now on! I'm so excited!!!
  3. Joh

    Academy Award Nomination Announcements; January 23, 2018

    Unrest is down to 8.3 stars on IMDb thanks to more negative votes. This is purely political, Unrest is simply not a 1 to 4 star movie. In addition the 1-star gang attacks Jen Brea on Twitter and uses hashtags like #pbsunrest and #timeforunrest when doing so to discredit her publicly. They can't...
  4. Joh

    Bath Fatigue Clinic - example of advice that harms child

    Forgot: If you click anywhere in the picture I posted in the first post (except for roger's name or picture) a new window will open with the whole Twitter-thread.
  5. Joh

    Japan Me Association: "Accolades for our Documentary Film"

    Thanks for finding it @Effi! Very interesting. Several scenes from this trailer appear in Unrest!
  6. Joh

    Bath Fatigue Clinic - example of advice that harms child

    I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
  7. Joh

    Japan Me Association: "Accolades for our Documentary Film"

    Thanks @Andy, that's so interesting! I had a look at the website of the Japan ME Association and it's crazy how identical our situation is worldwide. One of their recent posts is on the opposition to the national treatment guidelines for ME/CFS - sounds familiar! ETA: That's their blogpost in...
  8. Joh

    Petition: Create a virtual school for children too unwell to attend school

    There's also the awesome "no isolation" robot that IiME tries to utilize for children with ME. http://www.investinme.org/IIMER-Newslet-1711-02.shtml
  9. Joh

    Unrest now on Netflix

    And our very own s4me member @Grigor.
  10. Joh

    Unrest now on Netflix

    For all Germans here, you can also see 2 founding members from the German Association in Unrest, Sebastian and Anja, both say one short sentence. :)
  11. Joh

    Unrest now on Netflix

    Just found out - wowsa, ten kinds of sport! Edited to add: And now I read that Academic Decathlon is a thinking competition! Just as impressed and maybe I should read first and then post.
  12. Joh

    Unrest now on Netflix

    I'm sorry to inform you that you're in the very informational TED Talk. :) The good news is that I was totally confused yesterday and you're not in the trailer (sorry!!). What does Decathlon mean?
  13. Joh

    Academy Award Nomination Announcements; January 23, 2018

    Good point, but the things we suggest on the other thread (rating on every platform, writing reviews, making the film listed as "popular" on Netflix etc.) are not (only) for the Oscars but for making the film more visible and interesting for the public and journalists, doctors etc. It's more...
  14. Joh

    Guideline "Tiredness" by DEGAM

    Thank you very much for crossing fingers! And I'm also still going to answer your nice birthday wish and the others, I'm just so slothslow (that was supposed to be a very slowly moving gif, but didn't work). By the way I asked another Philipp on a German forum if he is you a few months ago...
  15. Joh

    Guideline "Tiredness" by DEGAM

    Thanks @Philipp, but I wasn't involved in this process! :) Most of the work was done even before I started to volunteer and all the letters written without me. I just happened to see the BMJ report on the first day it was published but I think that was the only source I contributed. (Apologies...
  16. Joh

    Guideline "Tiredness" by DEGAM

    As far as I know the BMJ leaflet and its parts about missing evidence for GET and CBT were included in the letters of the German Association to DEGAM - as was all scientific evidence. They're still trying to get the guideline tiredness corrected (as the only one of the three German charities)...
  17. Joh

    Unrest now on Netflix

    Hi @Valentijn, I wanted to ask you since the Million Missing protests but forgot. The person who is holding your picture is wearing all these medals. Are these your medals from martial arts? I think I remember that you once wrote that you had to stop it when your ME started (or was it another...
  18. Joh

    How to support Unrest in the Oscar race

    In case anyone else wondered if 5 am is a mistake. I now learnt in the group "Time for Unrest" that it's apparently common that they announce it early and it makes all the morning shows in the US. Good for us in Europe (14:38 Germany and 13:38 UK).
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