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  1. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    Thank you so much to everybody who has already signed (and spent precious energy and time on the signing process)! :hug: Below is a video made by German pwME:
  2. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    The picture was sent by a severely affected pwME. www.signformecfs.com
  3. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    An update from the team of Sign for ME/CFS: October 22nd, 2021 After a little less than ten days, #SIGNforMECFS passed the 10,000 online signatures mark this morning. We are very grateful for the support. Thank you very much! The best news is: With the current development, achieving the quorum...
  4. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    Great international support! The petition was also retweeted by Prof. Akiko Iwasaki @VirusesImmunity from Yale, by Sean O'Neill @TimesONeill and many more. :)
  5. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    Video from two of the petitioners. (Added the quote function as the big picture might be a sensory overload.)
  6. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    For those who prefer not to sign online (and create an account), or for those who would like to collect signatures, there is also the option to print out a list and send it via postal mail or telefax to the Bundestag. Signature list (English): https://www.signformecfs.de/downloads/SIGNforMECFS...
  7. Joh

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    Thank you for starting this thread! :) Since I saw the question elsewhere, just as an info: The petition will definitely be reviewed in the Petitions Committee of the Bundestag and a decision will be made on the demands, regardless of how many signatures are received. But if 50,000 signatures...
  8. Joh

    News from Germany

    I'm such a slow writer that I crossposted with @Michiel Tack (thanks for supporting the petition!), but but I guess it can't hurt to draw attention to it several times. :) Please sign ME petition to the German government Today a petition to the German Bundestag went online. Anyone from...
  9. Joh

    Mike's EU Marathons

    Hamburg Marathon is today! It has just started (8am UK time). @Mike Harley can be cheered on here and on social media. :emoji_clap::emoji_clap::emoji_clap: - Facebook: https://www.facebook.com/mikeseumarathons - Twitter: https://twitter.com/MikesEUmaras - Instagram...
  10. Joh

    Mike's EU Marathons

    New article from the German ME/CFS Association about Mike's EU Marathons. German original: https://www.mecfs.de/27-marathons-fuer-me-cfs Automatic English translation: https://translate.google.com/translate?sl=de&tl=en&u=https://www.mecfs.de/27-marathons-fuer-me-cfs
  11. Joh

    Mike's EU Marathons

    Just wanted to leave the link to the "Mike's EU Marathons" fundraising page here again. All of the donations go to Invest in ME. (A lot of pwME are struggling financially, so please ignore if it's not appropriate for you.) From the page: https://www.justgiving.com/fundraising/mikeseumarathons
  12. Joh

    News from Germany

    Mike has interviewed two pwME and the German Association for ME/CFS about the situation in Germany. Interviews in English and German. Mike is running the marathon in Hamburg on 12 September. A huge thank you. http://www.mikeseumarathons.eu/germany.html
  13. Joh

    Mike's EU Marathons

    ME in Germany Mike has interviewed two pwME and the German Association for ME/CFS. Interviews in English and German. Mike is running the marathon in Hamburg on 12 September. A huge thank you. http://www.mikeseumarathons.eu/germany.html
  14. Joh

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    The German TV Documentary “Living with Chronic Fatigue Syndrome. ME/CFS – A Misunderstood Illness” from July 2021 is now also available to watch online (until October 7) with Polish subtitles: https://www.arte.tv/en/videos/096283-000-A/living-with-chronic-fatigue-syndrome
  15. Joh

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    They are back now! Apparently a glitch. I was worried because of the comments for the IQWiG report.
  16. Joh

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    I just noticed that all of the NICE links are gone. Does anybody know more?
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