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Week beginning 25th March 2024 Part 1 of 2 News, advocacy and articles Australia Emerge presented short video responses to the Parliamentary Long Covid enquiry Forum member Simone Eyssens gave a presentation of the reality of ME/CFS and Prof. David Putrino followed with a summary of how LC is...

Week beginning 18th March 2024 News, advocacy and articles Science for ME letter to Cochrane On 17th March the S4ME committee wrote again to key people at Cochrane about the Exercise therapy for ME/CFS review, formally presenting the 70 organisations and 10,500 petition signatories supporting...

Week beginning 11th March 2024 Part 2 of 2 Research ME/CFS research Advanced Sensor Research A Novel Fluorogenic Probe Reveals Lipid Droplet Dynamics in ME/CFS Fibroblasts - Ding et al. A new technique tested on fibroblast cells from people with ME/CFS. "The results indicate the presence of...

Week beginning 11th March 2024 Part 1 of 2 News and advocacy The Guardian 'You don't want to get better': the outdated treatment of ME/CFS patients is a national scandal Author and journalist George Monbiot with a brilliant, detailed, well researched piece about the appalling history of how...

Week beginning 4th March 2024 News and advocacy USA - Solve M.E. has announced details for Advocacy Week, April 15-19, with "actions for every energy level and ability to join, from social media posts to virtual meetings with congressional leaders." Register for congressional meetings by March...

Week beginning 26th February 2024 News, advocacy and media Ireland ME/CFS patient advocate Tom Kindlon was nominated for an honorary degree at Trinity College Dublin. Although his nomination was supported by a long list of researchers, healthcare professionals and advocates it was ultimately...

For next week's news go to: News in Brief - March 2024

This thread has a Science for ME 'News in Brief' post for each week in March 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 19th February 2024 News, advocacy and media UK Channel 4 News M.E.: Lives devastated - and sufferers told it's made up An honest and heartbreaking report about the situation for very severe ME patients in the UK. Clare Norton tells the story of her daughter Merryn Croft and Sean...

Week beginning 12th February 2024 News, advocacy and media The Netherlands On February 15, the Dutch Parliament voted on several amendments including one for €4,4 million of additional funding for ME/CFS research and one on €27 million for the establishment of Long Covid clinics. Both...

Week beginning 5th February 2024 News, advocacy and media World ME Alliance has announced a theme/hashtag for World ME Day 12th May 2024: "Become a #GlobalVoiceForME." The website has tools to help folks post on social media and make custom posters. There's also an ME fact sheet, videos, and...

Week beginning 29th January 2024 News, advocacy and media The Netherlands A Dutch petition asks supporters to vote for post-COVID specialist clinics in the Netherlands. It closes on 13/02/2024 and will be handed to the House of Representatives. Petition | Thread Science for ME petition...

For next weeks news go to: News in Brief - February 2024

This thread has a Science for ME 'News in Brief' post for each week in February 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 22nd January 2024 Part 2 of 2 Research ME/CFS research Preprint IgG Antibody Responses to Epstein-Barr Virus in ME/CFS: Their Effective Potential for Disease Diagnosis and Pathological Antigenic Mimicry - Fonseca et al. Computer analysis of "a large public dataset on the IgG...

Week beginning 22nd January 2024 Part 1 of 2 News, advocacy and media USA Today US is turning its back on long COVID. We'll pay the price if we don't act. An opinion piece by U.S. Senator Bernie Sanders, chairman of the Senate Committee on Health, Education, Labor and Pensions. He talks about...

Week beginning 15th January 2024 News, advocacy and media USA Addressing Long COVID: Advancing Research and Improving Patient Care The U.S. Senate committee on HELP (Health, Labor, Education & Pensions) live-streamed this hearing on January 18. The website has a recording of the meeting (about...

Week beginning 8th January 2024 News, advocacy and media New York Amsterdam News The continuing fight for Long COVID and Myalgic Encephalomyelitis patients Interview with Billy Hanlon, director of advocacy and outreach for the Minnesota ME/CFS Alliance. He talks about Long Covid and ME/CFS...

Week beginning 1st January 2024 News, advocacy and media The Philadelphia Inquirer Anthony Fauci and unlocking the biggest mystery in medicine Michael J. Stephen MD writes that Covid-19 confirms the suspicion that viruses can trigger a "cascade of decline and misery". He has spoken to Anthony...

For next week's news go to: News in Brief - January 2024