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Week beginning 3rd June 2024 News, advocacy and articles UK #MEAction Questions to Ask Prospective MPs About ME/CFS A set of 6 questions on NICE compliant care, research and financial support. "By asking these questions, you can help ensure that prospective MPs are aware of the importance of...

For next weeks' news, go to this thread: News in Brief - June 2024

This thread has a Science for ME 'News in Brief' post for each week in June 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 27th May 2024 News, advocacy and articles Australia Emerge presents report to Minister of Health "Urgent recommendations to improve care for people with ME/CFS and long COVID" Report | Press Release | Thread Sweden The Patient Complaints Board in Stockholm issued a statement...

Week beginning 20th May 2024 Part 2 of 2 Research ME/CFS research Clinical Autonomic Research Is it time to move beyond blood pressure and heart rate during head-up tilt testing? - Miglis et al. The authors emphasise that orthostatic changes in cerebral blood flow, electrocortical activity...

Week beginning 20th May 2024 Part 1 of 2 News, advocacy and articles USA Senate hearing on the 2025 Budget Request for the National Institutes of Health took place on Thursday 23rd May. It included the need for more funding for research on Long Covid and ME/CFS. Thread The Hill Long COVID...

Week beginning 13th May 2024 Part 2 of 2 Research ME/CFS research Wiener klinische Wochenschrift Interdisziplinäres, kollaboratives D-A-CH Konsensus-Statement zur Diagnostik und Behandlung von Myalgischer Enzephalomyelitis/Chronischem Fatigue-Syndrom A new German Interdisciplinary...

Week beginning 13th May 2024 Part 1 of 2 News, advocacy and articles UK BACME - British Association of Clinicians in ME/CFS An open letter to Anna Gregorowski, chair of BACME, from Members of the ME community, facilitated by the Chronic Collaboration. It highlights failures of BACME to fully...

Week beginning 6th May 2024 News, advocacy and articles UK The Times People with ME have been ignored for far too long - Sajid Javid, MP and former Secretary of State for Health and Social Care. "This Sunday, World ME Day, is an opportunity to refocus minds on how much more needs to be done...

Week beginning 29th April 2024 Part 2 of 2 Research ME/CFS research American Journal of Physiology Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance - Medow et al. A small study on ME/CFS...

Week beginning 29th April 2024 Part 1 of 2 News, advocacy and articles UK Parliament A Westmister Hall debate on ME/CFS introduced by Sajid Javid, MP, was held on 1st May. Points raised include the lack of implementation of the NICE guideline in many areas, inappropriate hospital treatment of...

For next weeks news go to: News in Brief - May 2024

This thread has a Science for ME 'News in Brief' post for each week in May 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 22nd April 2024 News, advocacy and articles BMJ Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis - Naomi Harvey In a rapid response to a letter "We need better care for long covid and ME/CFS", Harvey...

Week beginning 15th April 2024 News, advocacy and media Trial by Error by David Tuller Senator Bernie Sanders' $10 Billion Long Covid "Moonshot" Proposal On the work to ensure that ME/CFS and patients who got sick with ME/CFS before the pandemic, will be included in the research program of...

Week beginning 8th April 2024 News, advocacy and articles USA Senate NEWS: Chairman Bernie Sanders Releases Long COVID Moonshot Legislative Proposal "Before formally introducing this legislation in the Senate, the HELP Committee wants to hear from the Long COVID community to get their views on...

Week beginning 1st April 2024 News, advocacy and articles Aotearoa New Zealand The Helen Clark Foundation Webinar "Long Covid – are we taking it seriously enough?" Panel included Profs Michael Baker, Paula Lorgelly and Warren Tate, with Jenene Crossan commenting as founder of Long Covid...

For next week's news go to this thread: News in Brief - April 2024

This thread has a Science for ME 'News in Brief' post for each week in April 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 25th March 2024 Part 2 of 2 Research ME/CFS and related research Frontiers in Immunology Longitudinal Cytokine and Multi-Modal Health Data of an Extremely Severe ME/CFS Patient with HSD Reveals Insights into Immunopathology, and Disease Severity - Jahanbani, Dafoe, Davis et...