Week beginning 24th February
Part 1 of 2 parts
News, advocacy and articles
Australia National Health and Medical Research Council
The NHMRC has been tasked by the Minister for Health to develop clinical practice guidelines for myalgic encephalomyelitis/chronic fatigue syndrome. Submissions...
Week beginning 17th February 2025
News, advocacy and articles
SciShow Exercise Actually Makes Chronic Fatigue Syndrome Worse
SciShow is a YouTube channel offering science news for a large audience. In this 8 minute video on why exercise doesn't work as a treatment for ME/CFS, they've managed...
Week beginning 10th February 2025
News, advocacy and articles
Issues in Science and Technology "Centering Patients in Long COVID Research" by Brian Vastag
Thorough article on the importance of including patients in research initiatives on Long Covid, on previous and current challenges and...
Week beginning 3rd February 2025
News, advocacy and articles
Sweden The current guidelines for post covid and other infectious related illnesses (including ME/CFS) has received a lot of criticism, among other for promoting GET. The Swedish Government has now asked The National Board of Health...
This thread has a Science for ME 'News in Brief' post for each week in February 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 27th January 2025
News, advocacy and articles
Sweden
Patient advocate and forum member Mitt Eremitage has gathered information about a planned study on fatigue by the psychologist Elin Lindsäter, who is part of the Oslo Chronic Fatigue Consortium. The information is to provide...
Week beginning 20th January 2025
Cochrane review Exercise Therapy for ME/CFS
As we reported in December 2024, Cochrane has cancelled the new review process and republished the 2019 review by Larun et al. as a 2024 review with the only change being an editors note announcing the cancellation...
Week beginning 13th January 2025
News, articles and advocacy
Europe
The European ME Coalition (EMEC) gave an update on the Horizon Europe call on high-burden, under-researched conditions. Three funded projects have been announced and focus on endometriosis, familial hypercholesterolemia, and...
Week beginning 6th January 2025
News, articles and advocacy
Emerge Australia Awards for Excellence in Journalism
Nominations open until 28th February 2025. "We are delighted to recognise and honour the exceptional journalists who are dedicated to enhancing media coverage of myalgic...
Week beginning 30th December 2024
:emoji_blossom: Happy New Year to all our readers :emoji_blossom:
News, articles and advocacy
ME/CFS Skeptic
Blogger ME/CFS Skeptic has written an excellent overview of the most interesting ME/CFS research studies of 2024. Studies discussed range across...
This thread has a Science for ME 'News in Brief' post for each week in January 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 23rd December 2024
News, articles and advocacy
UK Courts and Tribunals Judiciary
Maeve Boothby O’Neill: Prevention of Future Deaths Report, October 8, 2024
Regulation 28 report to prevent future deaths
The report was sent to some medical bodies and their responses have now been...
Week beginning 16th December 2024
Part 2 of 2
Research
ME/CFS research
Thesis
Disenfranchising Talk and Communication Work of People with Chronic Overlapping Pain Conditions — Karly Quaack, Ph.D.
"This dissertation explores important unanswered questions regarding interpersonal communication...
Week beginning 16th December 2024
:emoji_blossom: Seasonal good wishes to all our readers :emoji_blossom:
Part 1 of 2
News, articles and advocacy
UK Government Department of Health and Social Care with DfE and DWP
Improving the experiences of people with ME/CFS: consultation outcome
This...
Moderator note:
Since Cochrane cancelled the update of the Larun 2019 review and republished it unchanged as the 2024 review there has been much discussion over several threads. Now that action is beginning to happen we have decided to bring discussion together on this thread.
Posts about...
Week beginning 9th December 2024
News, articles and advocacy
Scotland Deadline news reports that the Scottish Government will be making its first funding commitment for ME after a 22 year wait. The budget for 2025-2026 has outlined an "additional £4.5m funding to deliver new specialist support...
Week beginning 2nd December 2024
Part 2 of 2
Research
ME/CFS research
Proceedings of the National Academy of Sciences
Transcriptional reprogramming primes CD8+ T cells toward exhaustion in Myalgic encephalomyelitis/chronic fatigue syndrome — Iu et al.
"it is currently unclear whether the T...
Week beginning 2nd December 2024
Part 1 of 2
News, articles and advocacy
UK APPG The All Party Parliamentary Group for ME, as all APPG's, was laid down at the election. A new group is being launched, with its first meeting at 1700 to 1830 on 17th December 2024. The agenda will include...
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