Week beginning 5th May 2025
News, advocacy and articles
Science for ME Fact sheet #2 - Post-exertional malaise (PEM)
Forum members have produced a fact sheet providing information about post-exertional malaise which is based on research and the experiences of many people across all severity...
Week beginning 28th April 2025
News, advocacy and articles
Documentary Doctors as Patients
A moving, honest and thought provoking documentary interviewing five medical doctors with post-acute infection-associated syndromes like ME, Long Covid and chronic Lyme. They talk about their...
This thread has a Science for ME 'News in Brief' post for each week in May 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 21st April 2025
News, advocacy and articles
USA - HHS/CDC Internal budget document reveals extent of Trump’s proposed health cuts
A Washington Post article reveals large cuts are planned for the HHS budget. Jaime Seltzer from #MEAction explains more details about these cuts...
Week beginning 14th April 2025
News, advocacy and articles
Trial by Error by David Tuller
My Visits with Alem Matthees, 2025
A very touching account of Tuller's visit with Alem Matthees and his family in Australia. Thanks to Alem Matthees' hard work, unpublished data from the PACE trial...
Week beginning 7th April 2025
Part 2 of 2
Research
ME/CFS research
Life
The PACE Trial’s GET Manual for Therapists Exposes the Fixed Incremental Nature of Graded Exercise Therapy for ME/CFS — Vink and Partyka-Vink
"our analysis shows that the arguments that are used to claim that there are...
Week beginning 7th April 2025
Part 1 of 2
News, advocacy and articles
Denmark The Danish Health Authority has announced that it will strengthen its efforts for ME/CFS patients. This will be based on two recent knowledge reports on the situation for ME patients in Denmark. The health policy...
Week beginning 31st March 2025
News, advocacy and articles
USA - #MEAction announced that this year's Millions Missing campaign is "largely focused on the seismic cuts being made to research funding, healthcare, and disability services in the U.S." Register now for one of the two planning...
This thread has a Science for ME 'News in Brief' post for each week in April 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 24th March 2025
News, advocacy and articles
Canada - Canadian Guidelines for Post COVID-19 Condition
This set of guidelines has been updated with new recommendations.
Website | Thread
Cochrane appeal The Science for ME committee submitted a five part complaint to Cochrane on...
Week beginning 17th March 2025
News, advocacy and articles
Sweden
The Swedish government has assigned the Swedish Agency for Health and Care Services Analysis to "examine how countries around the world are working to disseminate and apply knowledge about post-covid and other conditions such as...
Week beginning 10 March 2025
Part 2 of 2
Research
ME/CFS research
Frontiers in Neuroscience
Dysregulation of lipid metabolism, energy production, and oxidative stress in myalgic encephalomyelitis/chronic fatigue syndrome, Gulf War Syndrome and fibromyalgia — Davis et al.
"These results...
Week beginning 10 March 2025
Part 1 of 2
Cochrane review Exercise therapy for ME/CFS
The cancelled protocol for a new review
An author group was appointed in 2020 to write a new protocol and review to replace the 2019 review, Exercise Therapy for CFS by Larun et al. Cochrane announced in...
Week beginning 3rd March 2025
Part 2 of 2
Research
ME/CFS research
International Journal of Molecular Sciences
Cognitive Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome—Aetiology and Potential Treatments — Bansal et al.
The authors wrote a review on cognitive dysfunction in...
Week beginning 3rd March 2025
Part 1 of 2
News, advocacy and articles
Aotearoa New Zealand Public Health Communications Centre Aotearoa
Long Covid Update – a threat that continues to demand a strong response
"In addition to funding treatment and support services, this strategy must include...
This thread has a Science for ME 'News in Brief' post for each week in March 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 24th February
Part 2 of 2 parts
Research
ME/CFS research
Diagnostics
Comparative Study Between Cognitive Phenotypes of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Multiple Sclerosis — Aoun Sebaiti et al.
"Cognitive impairments in ME/CFS patients may be similar to or...
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