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Week beginning 27th October 2025 Part 2 of 2 Research ME/CFS research Development and content validity of the [Clinical] Needs Assessment for Myalgic Encephalomyelitis (CNAME) — Sarah F Tyson et al. "Although, a new concept in the ME/CFS community, the notion of needs assessment is well...

Week beginning 27th October 2025 Part 1 of 2 parts News, advocacy and articles The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what...

Week beginning 20th October 2025 News, advocacy and articles World ME Alliance recruiting a new Head of Advocacy and Comms “This is an opportunity to work with extraordinary people and organisations from across the world — from patient advocates and clinicians to global health leaders — to...

Week beginning 13th October 2025 News and articles Austria The rollout of Austria's national action plan for post-acute infection syndromes (PAIS), including ME/CFS, faces further delays. Although the plan was publicly presented in late 2024, it has not yet been approved by the Federal Target...

Week beginning 6th October 2025 News and advocacy UK Action for ME Big Survey 2025 The 5 yearly survey of people in the UK with ME/CFS will open on Monday 13th October. It has been developed by AfME in collaboration with Dr Katherine Cheston at Durham University. Details | Thread UK Action...

Week beginning 29th September 2025 News, advocacy and articles Trial by Error by David Tuller My Letter to Cochrane's Chief Executive Officer David Tuller has written to Karla Soares-Weiser, chief executive officer in Cochrane, concerning their review on exercise as ME/CFS treatment. The lead...

For next week's news go to this thread: News in Brief - October 2025

This thread has a Science for ME 'News in Brief' post for each week in October 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 22nd September 2025 News, advocacy and articles Switzerland The Council of States has approved a motion calling for a national strategy to improve the health situation of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long Covid. The patient...

Week beginning 15th September 2025 News, advocacy and articles #MEAction (USA) "Advocacy Works: Fighting for ME/CFS and Long COVID in Minnesota" An update on a new program, funded by the Minnesota Department of Health, for Minnesota state residents who have Long COVID, ME/CFS, and other...

Week beginning 8th September 2025 News, advocacy and articles UK Parliament Ask your MP to sign the Early Day Motion (EDM) on the Final delivery plan on ME/CFS. The motion welcomes the government delivery plan but points to the lack of commitment to research funding and lack of plans for...

Week beginning 1st September 2025 News, advocacy and articles Germany At the International ME/CFS Conference in Berlin on May 12 2025, a group of researchers signed an International Declaration stating that "there is a moral, medical, economic and scientific imperative to invest robustly in...

For next week's news go to this thread: News in Brief - September 2025

This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 25th August 2025 News, advocacy and articles UK ME Association awards DecodeME the Howes Goudsmit Award 2025 Dr Charles Shepherd of the MEA said: "Having been involved with some of the initial planning stages, and closely followed the progress of DecodeME, I know that a huge...

Week beginning 18th August 2025 News, advocacy and articles Ireland The Health Service Executive (HSE) in Ireland received funding to create the first HSE National Clinical Guideline for ME. The new guideline will aim to improve understanding, diagnosis, treatment, and management of ME in...

Week beginning 11th August 2025 News, advocacy and articles Denmark A journal on health and politics, Sundhedspolitisk Tidsskrift, writes about a protest letter to the Danish Health Authority signed by 849 ME patients and carers. The letter criticises the Danish Health Authority for having...

Week beginning 4th August 2025 Part 2 of 2 Other news, advocacy and articles Severe ME Day 2025 August 8th is the awareness day for Severe ME. This is a day to raise awareness for severe ME and to remember those who suffer from and have died from severe ME. Heartfelt and warm thoughts to...

Week beginning 4th August 2025 Part 1 of 2 DecodeME results announced Research Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome "DecodeME has provided the first robust evidence that genetic variation contributes...

For next week's news go to this thread: News in Brief - August 2025