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Week beginning 15th May 2023 News, advocacy and articles Germany The German Institute for Quality and Efficiency in Health Care (IQWiG) has published its report on ME/CFS. The final version has increased the prevalence estimates and toned down statements supportive of graded exercise and CBT...

Week beginning 8th May 2023 Part 2 of 2 Research ME/CFS research Journal of Translational Medicine Proteomics and cytokine analyses distinguish ME/CFS cases from controls - Giloteaux, Hanson et al. The researchers analysed the cytokine content of "extracellular vesicles (EVs) from frozen...

Week beginning 8th May 2023 Part 1 of 2 News, articles and advocacy International ME Awareness Day 12th May In Washington DC Long COVID & ME/CFS communities demonstrated on the National Mall with the installation of 300 cots to represent the millions of people missing from their lives. On the...

Week beginning 1st May 2023 News and articles PEM A new and excellent information video from BrokenBattery which in just two minutes explains Post Exertional Malaise (PEM). Video l Thread Dr David Putrino who researches ME/CFS and Long Covid has written a moving Twitter thread about his...

For next week's news go to this thread: News in Brief - May 2023

This thread has a Science for ME 'News in Brief' post for each week in May 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 24th April 2023 Part 2 of 2 Research news USA NIH has announced the members of the ME/CFS Research Roadmap Working Group. This group will will meet regularly in 2023 to identify research priorities and develop a roadmap for ME/CFS research. Details | Thread The Netherlands...

Week beginning 24th April 2023 Part 1 of 2 News and articles World ME Alliance has released a new 2-page fact sheet on ME with a particular focus on post-exertional malaise (PEM). Available in four languages. Article | Thread The US ME/CFS Clinician Coalition has posted a message on their...

Week beginning 17th April 2023 News and articles Austria A motion for a resolution for better care for ME/CFS patients was tabled in the Health Committee of the Austrian Parliament. Article | Thread Germany The final report by IQWiG on ME/CFS has been sent to the contracting agency and is...

Week beginning 10th April 2023 News, articles and advocacy USA The National Academies of Sciences, Engineering, and Medicine is calling for public comment on the U.S. Government working definition for Long COVID and related technical terms. The Online Public Comment Portal will be open until...

Week beginning 3rd April 2023 Part 2 Research news and commentary UK DecodeME Recruitment is ongoing for this questionnaire and genetic study. Participation is online and by post and all people over 16 in the UK with an ME/CFS diagnosis are encouraged to participate. The researchers report...

Week beginning 3rd April 2023 Part 1 of 2 News, articles and advocacy CDC - A recording of the ME/CFS Stakeholder Engagement and Communication (SEC) Call from Dec. 6, 2022, is now available. It includes a presentation by Dr. David Systrom titled, “Neurovascular Dysregulation During Exercise...

For next week's news, go to this thread: News in Brief - April 2023

This thread has a Science for ME 'News in Brief' post for each week in April 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 27th March 2023 News, articles and advocacy Nina E. Steinkopf has written an article with more details about an ME seminar in Oslo with a biopsychosocial approach for specially invited. Steinkopf has asked one of the attendees, the chief physician for the Norwegian Labour and...

Week beginning 20th March 2023 Part 2 Research news New Zealand (Aotearoa) Post-Viral Research Aotearoa Founded in 2022 with lead researcher immunologist Dr Anna Brooks. Crowd-Funded Research into Long Covid, ME/CFS & Other Post-Viral Illnesses Hosted at the University of Auckland. Volunteers...

Week beginning 20th March 2023 Part 1 of 2 News, articles and advocacy Austria CFS Hilfe announced on Facebook that the ME/CFS petition was handed over to the Health Committee with the support of all fractions. CFS Hilfe hopes for constructive treatment in the Health Committee and concrete...

Week beginning 13th March 2023 News, articles and advocacy Sweden On 8 March, members of the Swedish Parliament held a seminar on ME/CFS and the need for more research and specialist centers. Among the speakers were Jonas Bergquist and Brian Hughes. Article here Thread here Europe The...

Week beginning 6th March 2023 News, articles and advocacy USA - Solve ME posted an update on the CDC's attempt to create a set of clinical guidelines for ME/CFS. "Unfortunately, the CDC has determined that there is not enough evidence to formulate the recommended guidelines, and they will...

Week beginning 27th February 2023 Part 2 of 2 Research Biomedical ME/CFS research Frontiers in Neuroscience Brainstem volume changes in ME/CFS and long COVID patients - Thapaliya, Barnden et al This small MRI study found some named regions of the brainstem were significantly larger in both...