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Week beginning 9th October 2023 Part 1 of 2 News and advocacy Australia This month the ME/CFS Registry (You+ME, Aust.) and Biobank will be expanded and renamed the Australian ME/CFS and Long COVID (AusME) Registry and Biobank. Participants to include people aged 12+ with ME/CFS, Long COVID...

Week beginning 2nd October 2023 Part 2 of 2 Research news and commentary Austria The first Austrian ME/CFS Biobank has been under construction at the Medical University of Vienna since September 1, 2023, with support from an initial grant provided by the WE&ME Foundation. The project is led...

Week beginning 2nd October 2023 Part 1 of 2 News and advocacy Brazil The government has passed a law establishing care guidelines for fibromyalgia and "chronic fatigue" - waiting for final presidential approval. Article | Thread UK Government Work Capability Assessment: Open Consultation...

This thread has a Science for ME 'News in Brief' post for each week in October 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 25th September 2023 Part 2 of 2 Research ME/CFS research Metabolites Bayesian Statistics Improves Biological Interpretability of Metabolomics Data from Human Cohorts - Brydges et al. "We use metabolomics data from three independent human cohorts that studied plasma signatures...

Week beginning 25th September 2023 Part 1 of 2 News, articles and advocacy Science for ME letters to Cochrane and petition update Cochrane has replied - but don't get excited yet "We wrote another open letter to Cochrane ... emphasising the need for urgent action. We have today, 30th...

Week beginning 18th September 2023 Part 2 of 2 Research news Norway The research council of Norway has allocated 11 million NOK (approximately $1 million) to a study titled "Impaired microcirculation and tissue hypoxia as a possible mechanism in ME/CFS". The study is led by Professor Karl...

Week beginning 18th September 2023 Part 1 of 2 News and advocacy JNNP Rapid Response: The ME community support NICE and reject the misguided attack in ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for [CFS/ME] - Spreag et al. JNNP has published an...

Week beginning 11th September 2023 Part 2 of 2 ............ Research news ScienceAlert New Blood Test For Chronic Fatigue Syndrome Has 91% Accuracy On the preliminary results from a study by Jiabao Xu et al on a blood cell-based test for ME/CFS. "The blood test differentiates between the...

Week beginning 11th September 2023 Part 1 of 2 News and advocacy Petition "Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review" The Science for ME petition in support of the open letter to Cochrane now has over 6000 signatures. Please sign and share. Petition | Petition thread...

Week beginning 4th September 2023 Part 2 of 2 Research news UK DecodeME Many more UK people with ME/CFS are needed for this large genetic study. All severity levels can take part as participation is from home. Questionnaires can be filled in on paper or online, and saliva samples for DNA...

Week beginning 4th September 2023 Part 1 of 2 News and advocacy Petition "Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review" Last week the Science for ME committee sent an open letter to the Editor-in-chief and other senior representatives of Cochrane requesting urgent...

For next month's news go to this thread: News in Brief - September 2023

This thread has a Science for ME 'News in Brief' post for each week in September 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 28th August 2023 Part 2 of 2 Research ME/CFS research Wiley Advanced Science Developing a Blood Cell-Based Diagnostic Test for [ME/CFS] Using Peripheral Blood Mononuclear Cells - Jiabao Xu, Morton et al. ".. a single-cell Raman platform and artificial intelligence are utilized...

Week beginning 28th August 2023 Part 1 of 2 News and advocacy Cochrane Exercise therapy for ME/CFS review The S4ME committee has sent on behalf of members an Open Letter to Karla Soares-Weiser, editor-in-chief of Cochrane, requesting: "1. The immediate withdrawal or retraction of the 2019...

Week beginning 21st August 2023 News and advocacy UK Government Open consultation Improving the experiences of people with ME/CFS: interim delivery plan A reminder that the consultation ends on 4th October. Website | Plan | Consultation | Thread ME Research UK has published a response to the...

Week beginning 14th August 2023 News and advocacy Aotearoa New Zealand Parliament Select Committee Response to Petition The Health Committee has considered the petition of Associated Myalgic Encephalomyelitis Society Incorporated—Reclassification of ME/CFS to disability—and recommends that the...

Week beginning 7th August 2023 News and advocacy UK Government Open consultation Improving the experiences of people with ME/CFS: interim delivery plan "We're seeking your views on an interim delivery plan to improve the experiences and outcomes of people with ME/CFS. This consultation closes...

Week beginning 31st July 2023 Part 2 of 2 Research ME/CFS research Journal of Medical Virology A multicenter virome analysis of blood, feces, and saliva in ME/CFS - Briese et al. "We found no consistent group‐specific differences other than a lower prevalence of anelloviruses in cases...