This thread has a Science for ME 'News in Brief' post for each week in January 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 25th December 2023
News, advocacy and media
UK Yahoo News Council responds to billboard criticism from long Covid campaigners
"The Medical Research Council has reacted to criticism by long Covid campaigners who put up a large billboard near its Swindon office." Responding to the...
Week beginning 18th December 2023
Part 2 of 2
Research news
UK Invest in ME Research LunaNova Fellowship
Applications are invited for a Postdoctoral Research Fellowship to join Prof Simon Carding at Quadram Institute Bioscience (QIB), based in Norwich, UK.
"The successful candidate will...
Week beginning 18th December 2023
Part 1 of 2
:emoji_evergreen_tree: Seasonal good wishes to all our readers :emoji_evergreen_tree:
News, advocacy and media
Patient Led Research Collaborative Open letter sent to President Biden
An open letter signed by clinicians, researchers, research...
Week beginning 11th December 2023
News, advocacy and media
#MEAction has announced plans for Millions Missing 2024, "a national campaign to educate hospital systems and medical schools about ME/CFS." The goal is to hold in person events at medical schools and hospitals during the week of May 3...
Week beginning 4th December 2023
News, advocacy and media
Trial by Error by David Tuller Dutch Survey respondents Rate GET/CBT as "the Worst" Approach, Per New Report
Graded exercise therapy was rated as the worst intervention in a Dutch survey with more than 1500 ME/CFS participants. The...
Week beginning 27th November 2023
News, advocacy and media
Action for ME Podcast: Learn about M.E. and Paediatrics
"Hear from consultant Dr Binita Kane how her experience of her and her family’s health has made her reconsider her understanding of post-viral illnesses like M.E. and Long COVID...
This thread has a Science for ME 'News in Brief' post for each week in December 2023 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 20th November 2023
News, advocacy and media
USA Government Announcement of Intent To Establish Federal Advisory Committee on Long COVID by the Office of the Assistant Secretary for Health, Department of Health and Human Services. Appointees will come from a range of professions...
Week beginning 13th November 2023
News and advocacy
Trial by Error by David Tuller
Cochrane Ends Silence on ME/CFS Exercise Review Developments
A writeup about the update after over two years of silence from Hilda Bastian, head of the Independent Advisory Group about the development of a new...
Week beginning 6th November 2023
Part 2 of 2
Research recruiting participants
Science for ME has a subforum for clinicial trials and other studies that are currently or will soon be recruitiing participants. Such studies from around the world are often registered at the Clinical Trials...
Week beginning 6th November 2023
Part 1 of 2
News and advocacy
UK DecodeME - Last few days to join the research
The questionnaire part of this large genetic study must be submitted before Wednesday 15th November at 5pm. That is also the last day for requesting a replacement spit kit. Note...
Week beginning 30th October 2023
News and advocacy
UK DecodeME There is about week left for people in the UK over 16 with an ME/CFS diagnosis to sign up and complete the questionnaire for this large genetic study. Contribute your experiences before 5pm on 15th November.
Those invited to...
This thread has a Science for ME 'News in Brief' post for each week in November 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.
Week beginning 23rd October 2023
Part 2 of 2
Research news
Yale School of Medicine ME/CFS, Long COVID, and Chronic Lyme Disease Research Aided by $3 Million in Donor Gifts to Yale School of Medicine
About generous donations from Emily Fairbairn and Carol Sirot to fund the research of Akiko...
Week beginning 23rd October 2023
Part 1 of 2
News, advocacy and articles
UK BACME British Association of Clinicians in ME/CFS 2023 National Services Survey Report has been published and provides "a very comprehensive view of the current provision of specialist ME/CFS care in the UK". It also...
Week beginning 16th October 2023
News, advocacy and articles
UK DecodeME Webinar recorded on 12th October is now available as video, audio and transcript. Professor Chris Ponting, Sonya Chowdhury and Sian Leary discuss the questionnaire findings and timeline for completion of the study.
Anyone...
Week beginning 9th October 2023
Part 2 of 2
Research
ME/CFS research
The American Journal of Medicine
People With Long COVID and [ME/CFS] Exhibit Similarly Impaired Vascular Function - McLaughlin et al.
Flow-mediated dilation measurements were from 17 each of ME/CFS, Long Covid and healthy...
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