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Wondering how they’d do for gardening in a place where there is intermittent engine noise. Currently use noise cancelling headphones but it would be nice to be able to hear someone talking to me without the engine noise. (In my dreams it would also filter out all children screaming too - in a...

Seems a bit garbled in conclusion? “As an exploratory endpoint, changes in plasma inflammatory protein markers were associated with reduced FSMC scores in the pooled material.” sounds like it was a last minute thing to test it and yet it seems to be a foundation of their conclusion? Not sure...

Telemedicine is a wee bit Star Trek …? this is kinda fun…to be reminded that stuff does come up ETA: rapid blood test machines and immunotherapy for cancer treatment too - although they’re just getting warmed up

Figuring out that we were trying to cure cancers like prostate all wrong. And then getting it right. (Stop it metatstatising) blood tests for various cancers (eg breast) Various tests and treatments for cystic fibrosis research that saved lots of people from unnecessary surgeries for knee...

Malaria vaccine

Hi @Woozy, I hope our discussion of the big picture around tinnitus and symptoms hasn’t been too OT (off topic) for you. I notice you said that this started recently and suddenly. And that you’re currently not suffering from PVFS? (I only ask that bit because some people on this forum find it...

How to tackle the Long Covid threat, and how not to https://www.rnz.co.nz/news/on-the-inside/466934/how-to-tackle-the-long-covid-threat-and-how-not-to

I don’t know about the UK or the US etc but I’m a big believer in the no blame approach to management. Some years ago, went to a course as a first responder. Run by a senior police trainer. Told us that we had a great culture, one that the police would really benefit from /needed more of: We put...

I only ran across it as a comment in a published bit I was reading for other reasons. It was just nice to see an example of medical researchers pointing out how assumptions about this sort of thing need to be addressed (so that quite eminently treatable problems, with huge QoL impacts, do have...

“If a person learns to rate his or her own symptoms as less severe or threatening, then this can be seen as a genuine relief” Wow. On the other hand, I found an article about anaemia in people with IBD in which they realised that the idea of symptomless anaemia from slow onset was actually when...

Glad to hear you’ve made a decision and feeling good about it! We have matt white tiles on our bathroom walls and a sort of marble/sandstone tile on the floor (but your patterns look really beautiful so I’m considering that for future projects…tho maybe I’d find it confusing some days). The...

Sorry to be a bit slack here, have only read this thread. Wondering if this sort of phenotyping is infection-specific. i.e. if you tested a person who was not infected with covid 19, or if they were infected with something else entirely, would they always be categorised into the same phenotype?

I like her more as the piece goes on. It’s not a good intro to ME/CFS (really not) but it does introduce us to her. And a quick google-stalking provides more context, with a website of creative writing / prose and an instagram account. There’s a real potential here. I hope that she gets both...

I agree with the original post. If 70-85% of pwME can’t work due to their illness, why do we keep telling stories in the media about people who have careers? And (I’ve not got the description here right so please bear with me) if 75-85% of pwME are not bedbound in a darkened room all day...

I think maybe some other quotes might help. (NB I have to admit, the quote you chose did make me uncomfortable. The reason I get no medical care is because there’s a lack of research and known effective care to give me. I dislike that every mention of my illness requires reference to...

I’m taking this on here (instead of a new thread) partly because this abstract deserves bumping and partly because it seems on the same general subject (somatisation - what does it mean?). I found this thread...

Slightly blown away to realise that my reaction was that it was an excellent description of some of my own experience …but that I had become so worn down that I completely failed to be outraged. Just glad that someone put those words out there to be heard. I wonder how many people think they...

Article on RNZ: https://www.rnz.co.nz/news/on-the-inside/459201/what-life-is-like-with-a-post-viral-illness What life is like with a post-viral illness - Michael Hall Good article of his experience. Does cover the essential larger issues and eventually mention ME/CFS (but not so soon that...

Just took a look at the “Covid-19 data visualisations: NZ in numbers” page of RNZ. “Active Covid-19 cases” graph. There is a huge drop in cases for the last two data points (days). The note at the bottom says “On 16 December the Ministry of Health changed its reporting of active case to cases...

Not at all an expert, but logic might suggest that time might be a factor (the more time you are infected/ill, the more replications, the greater chance of mutation). Then multiply that by number of people infected. Then there are variants and conditions that produce a greater viral load...