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that's a relief about the RCP - does this mean the national coordinating centre is the chronic conditions one? Also is the IAPT still in charge of commissioning the guidelines? If I understand it right that means they get influence over the scope? The link from York is the evidence used to...

names of those involved last time https://www.ncbi.nlm.nih.gov/books/NBK53585/ the Consensus Expert Rosalind Raine had a 2002 paper in which she referred to CFS as one of the most common somatic syndromes...

GPs are basically deciding what goes on in the secondary specialist clinics, bizarre! The info they came up with from the last review - https://www.york.ac.uk/media/crd/crdreport35_summ.pdf This update was funded by the National Institute for Health and Clinical Excellence who have...

Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME Northern Ireland - back in 2017!!! According to the IAPT webpage it's still listing the "CFS/ME" guideline as under their control - that's the...

In reality it doesn't matter what the conflict is it won't prevent you from being in the guideline group. They only do conflicts of interest after choosing the members. The MS NICE guidelines have minutes up - conflicts get declared at the start of meetings and that's it. Looks like nobody...

Given that's she's chair of the BACME and running the London Fatigue Clinic, she's also basically got 2 stakeholders to feed back as too - so her views are also in the 10 year surveillance report and other stakeholder consultations According to her Esther Crawley's FITNET-NHS has something to...

Supporting people set severe ME by Greg Crowhurst, from The Nursing Times Understanding severe ME by Greg Crowhurst Severe ME symptoms by 25% Group General International Consensus Primer - the diagnostic checklist, the inclusion of Atypical M.E. (less symptoms than M.E.) and the bullet point...

Stay away from the BACME and it's "maintaining" and "rehabilitation" talk. What happens when you try to "maintain" your level and it turns out you have the progressive form of the illness? That's how many got severe in the first place. BACME are pure BPS and their current Chair Gabrielle Murphy...

Theo Anbu is also lead paediatrician at Alder Hey, which is BACME recommended. I'm sure people have here seem his IACFS presentation from 2011 where he sidesteps the science and talks about NICE guidelines compliance and how "positive" the patients and parents find the service (those that have...

Theo Anbu / A. T. Anhu BPS / RCPCH views According to his 2009 paper with A.G. Cleary at Alder Hey - it's biological but with illness rights etc contributing - they don't mention it's neurological, but do mention that some professionals call it medically unexplained symptoms or functional...

3. Wiborg, Jan F.; van der Werf, Sieberen; Prins, Judith B.; Bleijenberg, Gijs (May 2010). "Being homebound with chronic fatigue syndrome: A multidimensional comparison with outpatients". Psychiatry Research. 177 (1-2): 246–249. doi:10.1016/j.psychres.2010.02.010...

1. Strassheim, Victoria Jane; Sunquist, Madison; Jason, Leonard A; Newton, Julia (2018). "Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a two-phase community pilot study in the North East of England"...