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  1. Daisymay

    New Video: NICE pause ME/CFS guideline

    Excellent Adam, thank you x
  2. Daisymay

    Informed Consent

    Sorry I forgot to say all the best for the RT tomorrow and thanks very much for all your work.
  3. Daisymay

    Informed Consent

    Yes but can patients not be told there is tentative evidence of energy issues? And is there not sufficient evidence of PEM, IOM thought so?
  4. Daisymay

    Informed Consent

    Should these also not be included in any information sheet? 1. there is biomedical research showing energy production abnormalities and PEM in ME patients and the implications of this if they undertake GET 4. patients need to be informed of the rationale behind the use of the CBT/GET. They...
  5. Daisymay

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Absolutely! It is bizarre how he doesn't seem to be aware how bad he looks, exposing his lack of knowledge and expertise in this way. And what about fully informed consent.....how can that be achieved if doctors are themselves so ill informed?
  6. Daisymay

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Absolutely. I'm reminded of this quote: http://margaretwilliams.me/2014/points-for-david-tuller.pdf "The Wessely School repeatedly uses a well-thought-out strategy: first they actively ignore the extant biomedical evidence base, failing to reference it in their papers and websites, leading...
  7. Daisymay

    The biology of coronavirus COVID-19 - including research and treatments

    I've wondered that too, a really nasty virus swept round our village here in the southwest and everyone said at the time what an unusual and nasty virus it was. It took many healthy people weeks/months to fully get over it. I never usually get a cough and chest issues but that time I did...
  8. Daisymay

    The European Association of Psychosomatic Medicine (EAPM)

    So anecdotal evidence is completely believable to these people when it comes from are a professor who can muster up a lot of media coverage and the anecdote is supportive of the BPS view BUT if the anecdotes of harm from CBT/GET of hundreds of thousands of patients ( majority female) over...
  9. Daisymay

    Paradigm Lost: Lessons For Long COVID-19 From A Changing Approach To CFS, 2021, Hughes, Lubet and Tuller

    Yes an excellent article, thanks very much to all involved.
  10. Daisymay

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Or perhaps they're not clueless but quite the reverse and know exactly what they are doing.
  11. Daisymay

    The biology of coronavirus COVID-19 - including research and treatments

    But then surely the vaccines, injecting spike proteins into individuals, could be doing the same thing, altering gene expression?
  12. Daisymay

    Cochrane Review: Cognitive behaviour therapy for chronic fatigue syndrome in adults, 2008, Price et al

    Excellent work Carolien Struthers and everyone else involved over the years. Surely Cochrane should also be sending out emails to inform health services etc that the review is no longer valid?
  13. Daisymay

    The disabled doctors not believed by their colleagues

    Benefits and health insurance staff?
  14. Daisymay

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    What......anyone in the BPS brigade listening to patients, you must be joking!
  15. Daisymay

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Over the decades the BPS lot have done this over and over again, it's the way they work, which is awful for us but also a sad and damning reflection of them.
  16. Daisymay

    Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine) Nijs et al.

    Could someone please tell me if central sensitisation is a proven phenomenon or is it just an idea?
  17. Daisymay

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    And the thing is a statement on the NICE webpage is simply not enough, the info has to be sent out to all medical personnel otherwise it's pointless, all medics and professional bodies need to be informed by NICE. This shouldn't be a difficult task, there must be email systems in place to...
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