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They potentially relate to some meaningful clinical groupings, for example people displaying non epileptic seizures, but ‘functional’ is generally used as a synonym for ‘psychogenic’ which is not evidenced and are increasingly lumped together so people with IBS are offered the same treatment as...

Hope it works well @Yann04

They are available in the UK through some of the larger pharmacies (eg some city branches of Boots) and some private health facilities. I had thought it was cheaper, but just checking online Boots charges just under £100 and I imagine they will be fairly typical.

Interesting they have chosen to restrict themselves to the oesophagus. Does that mean those with broader issues or problems further along the digestive tract escape from the functional conditions crew’s empire building? As always one worries how many treatable conditions get missed because of...

I had my flue jab yesterday afternoon at a pharmacy (my GP practice had no slots available for those over 65 until into November). No obvious impact from the jab. The pharmacist was saying they have had a lot of comments/complaints about the reduced eligibility of Covid boosters here in the UK...

Yet more patient blaming.

This seems to imply there are two components to ill health, the triggering biomedical condition and an additional ‘sickness behaviour’ response on top, and further that it would theoretically be possible to be ‘ill’ without feeling ‘ill’. A useful comparator might be my experience of bing...

Even though it was some thirty years ago, I do clearly remember trying to ring the on call doctor service in the middle of the night in the first twenty four hours of my ME triggering acute episode of glandular fever (mono). Just dialing the phone number was a struggle (my digit span was down to...

The idea that ME/CFS is related to some form of ongoing viral infection either a persistent infection, perhaps as a virus reservoir in some part of the body inaccessible to testing as with say Ebola persisting in such as the eyeball, or a novel or poorly understood virus such as retroviruses has...

Perhaps you should say ‘having devoted much of their careers to maligning us’ as they have also worked quite hard at maligning other clinical and non clinical groupings too.

Yes, thank you for pointing this out.

Thank you, I don’t know how I managed to read LibDem as Conservative. Have corrected post.

A non sequitur but I was caught by “She also appeared in a damaging 1990s GP training video about #MECFS, saying to a patient “You’re obviously drinking erratically during the week.” A strange thing to include in a training video when many people with #MECFS don’t tolerate alcohol”. Many years...

Baroness Scott is a Conservative [LibDem] with a background in dairy farming and local government. Lord Bethell is a Conservative hereditary peer (I keep forgetting there any left). He had a background in journalism and had a nightclub before going into politics running for a number of...

Moved posts Action for ME have two ‘champions’ in the Lords though the names on the list meant little to me: Baroness Scott Lord Bethell

It does seem a common issue of ME/CFS researchers with over promising and under delivering. (Present company excepted.)

On other threads we have had discussion about good and bad researchers and research methodologies. Brian Hughes writing provides very useful sources on scientific methodology. Though primarily aimed at psychology it is very relevant to critiquing the research on behavioural and psychological...

I very much agree but see a benefit from better research being done to counter the over enthusiastic practitioners and the downright quacks. I suspect a large number of people with ME/CFS have when going through the ‘trying anything and everything’ phase will have over supplemented. For a spell...

The study selected on the basis of the Fukuda criteria using data collected retrospectively from medical records. The sample was 42% male which is a bit high and might suggest there some bias arising clinic’s referral patterns. I am struggling to see from the paper how they measured fatigue...

Struggling to read much this evening, but I wondered about the severity of the ME/CFS subjects in the in vivo hyperthermia trial. My personal reaction to heat varies enormously in relation to the current severity of my ME and also the autonomic components at the time. In general I love a warm...