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  1. Wilhelmina Jenkins

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Prior to the 1984 outbreaks in Tahoe and Lyndonville, people were just not being diagnosed here. Including me. Ramsey wasn’t used here, with a few possible exceptions. After the outbreaks, information became fairly widespread. Initially most people called the disease Chronic Epstein Barr...
  2. Wilhelmina Jenkins

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    I understand that reaction. Unfortunately that was my reaction after the recent NIH conference. I had 2 reactions - joy at seeing all of those researchers together at last and the feeling that we have a very long way to go. Dr Komaroff’s summary was taken from that meeting. He’s been doing...
  3. Wilhelmina Jenkins

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Just wanted to say quickly that I believe that this article is a part of the effort to grow the research field here in the US. As such, it probably is a bit optimistic to catch the attention of potential researchers. NIH is sticking to its usual funding mechanisms where researchers compete for...
  4. Wilhelmina Jenkins

    #MEAction: "Unseen: Black people living with ME"

    Hi, forum members! I usually just lurk and read all of your good discussions, but you brought up a couple of things that I wanted to address. First, thanks for reading what I wrote. It was a personal essay, so it didn’t contain any statistics. But it’s important to remember that we don’t have...
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