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Something that could help, is to see the symptoms of plp of exercise intolerance (mito and POTs group) vs the PEM group (CFS). Since I have both POTs and CFS I can tell you it comes down to the exacerbation of existing symptoms. I would propose to change to the second one as follow: A flare of...

Dead, heavy feeling after starting to exercise. Sometimes, If I am having good day, is ok (at a 7 or 8) Next day soreness or fatigue after non-strenuous, everyday activities. Yes no matter the scale. Mentally tired after the slightest effort. Not anymore (it takes more to get brain...

Just so you know, it did cause herx for me (still does when I take breaks), I felt very fluish, lymph pain... general malaise. I had to lower the dose and was ok. I have a very hyper reactive immune system. I can herx from some teas!!! I have heard others react the same.

Specially on people like me, I have a week in bed the next normal. I am relapsing remitting type, so deconditioning makes no sense. Note, I have POTs also, and I do get worst (my period drives the worst crashes).

DWP funded a group of academics : "DWP" and "government" it is people under the name of those organizations, I think they have to dig deeper and name names and bring all this to light so we can start to untangle this mess and the relationships to all the PACE people (and follow the money). Time...

Doesn’t come up in my iphone.

What is the link to the video so I vote dislike too?

Can international ME associations and Scientist participate or is this only UK people allowed?

Well the issue with biobank was as Davis says, if the blood is collected wrong then all studies are screwed!!! So not sure we know enough as to how to collect the blood properly at this point. The other for studies stuff look ok. I would love to see some family incidence studies ( wouldn’t cost...

Just wondering, is it the editor only or we know the head and top of BMJ is informed???

I would think it is more not a autoimmune of the B cells? Sorry I don't understand immune system much, but ritux failed, cannot still be possible the autoimmune is on the T cells (or NK cells since is where we see isues??)) I don't know but just a question.

The point at this stage of the game, ALL THESE people are not incompetent, Some are being misled (COPE), others KNOW what they are doing, the question is why the support from the Journals and institutions. The university group got exposed so we know they support the BPS model and why. We need...

@Valentijn WAIT: "The new research, on the other hand, is not about adding evaluations at 6 weeks and 6 months. It's about trawling through school absence records, contacting families of absentee children, and attempting to diagnose them to recruit them to the clinic. " Who paid for this...

The data policy was implemented on March 3, 2014. Any paper submitted before that date will not have a data availability statement. However for all manuscripts submitted or published before this date, data must be available upon reasonable request.[3] http://me-pedia.org/wiki/PLOS_ONE Maybe we...

That is correct, Plos one policy only apply to papers submitted after March 3, 2014 http://me-pedia.org/wiki/PLOS_ONE Pace was published by PLOS ONE on August 1, 2012

What I understand (not understand but gathered from the claims) is that the PACE trial paper was submitted before the DATA rules were implemented for our misfortune. So they are not required per this outline.

You said that Famciclovir was not that effective for certain viruses (sample: hh6v), But use vanciclovir for (hh6v), can you please elaborate on what antivirals are appropriate for the known CFS viruses cases: EBV HH6V CMV .......

I didn’t either for me my tell tell is I start dropping things from left hand, way beyond anything else. Then the yawning... took me a while to figure out my tell tells.

Yes, I htink is from the autonomic system, when it is pushed beyond your energy permits (see videos of Jessica and Jen on Unrest and the other movie which I always forget the name). When I went for autonomic testing by the third day I experienced it (in the valsava test). If you get to that...

Unless you are on the beauty community since that is how they make their money!!! and trends setters, celebrities..... I have a list longer that I can post just on people that need to post to increase the traffic and also they make money by posting!!!! Now some old plain common people I agree do...