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My sister struggles with this, they have her on Iron and b12 shots for live, and she has to be very careful and she does experience extreme fatigue, she does not have PEM, so the difference between us is she rest and is good to go and can exercise (unlike me).

I wonder, what is the tag on the Bracelet, I was thinking about it, but what do you piut? When I say on ER i have POTs or ME is like I said nothing. WEARING A MEDICAL ALERT BRACELET- So that if I do faint in public, hopefully the ambulance men will read what is wrong with me.

Inmune Crash: Fluish, Joint pain, brain fog... Over do Crash: phase I = Drop things on left hand, brain fog, depth perception issues, noise sensitivity, muscle pain if push after that phase 2= Yawning, extreme fatigue, Brain fog intensifies, heaviness on legs, and all muscles, insomnia...

If you all mobilized like it happend in USA and they knew we would not take garbage and said we would ask for review if they came up w garbage, you might be surprise. You just have to show you are strong as a unit ( ME) and watch and make very public and noisy complains, then you will get what...

Through out my adult live I would have pain during on the left side on certain positions, and when I was younger nobody could find anything. Now that I have been diagnosed with colitis and I get obvious flares I recOgnize the pain that has been w me all this years! Was colitis related of that I...

So like would be appropriate to send all David's Tuller Articles?

WHat I understand is that the use of scientist or person name for disease have been abandon, why they would not consider Ramsey as a name. I forgot why this is the case or where I read it becuase that was my preference back in the day too.

I tried to rate from all devices but knew it was me, I am voting ehreywhere I could netflix, imdb...

I think the focus right now should be symptom treatment while biological research move forward: Use established treatment for: Sleep, OI, Inmune disregulation tailored to the patient unique needs. Metabolic abnormalities....

Ok let me dig deeper here. The BPs is all about insurance payments. So how much does a child disable gets? more than an adult? Same? And is there the 2 year cap on the child for psychological causes too?

Agreed!!! also, would be nice, to keep in mind she is just a puppet for the BPS giants, she can be interchangeable, we need to expose the puppeteer also and follow the trail so she cannot be easily replaced while we have the dog by its tail.

The problem is the immune issues you see are different per person, that does not mean as an individual you do not care, I know a few people and they all had different issues: One had sojern, another some IGG subclass deficiency.... That we are not the same does not mean the standard finds do not...

To clarify, this immune findings are not bizarre or unique to CFS (except for the low NK activity which is in research) for example: In my case I have low NK cells, this is accepted internationally as NK cell dysfunction (please google), I do not remember the ICD code. And her treatment was...

As studies are done, we can collect significant data, just at the cost of the forms and data Analysis. 1) Prevalence of transmissions to children (father with CFS to Child, Mother with CFS to child). 2) Prevalence of any other family member and relationship and order of sickness onset. 3) Is...

Ohhh I get it tx! Now about if antiviral drug Help Cfs. Some Cfs develop other immune deficiencies. In my case I have super low NK cell function ( my activity is a seperate issue which is associated with cfs) this fenomenum is acepted by all doctors and there is a existing international health...

Can somebody email David Tuller w this one!!!!

We need copies of what this sessions entail and publish them ( any volunteers)?? :whistle:

Can all the ME organizations show up and do something ???? Record it all? Like as ME how do we counter act and monitor ??? Is funny they are regrouping to come w strategy. We need to tackle this soon

Yes, I guess it was my point ( I tried to make) the first set I don’t like because it meassured more severity than yes or no to PEM.ñ ( like the second does).

Note: The questions have to apply in good days and bad days. Some days I do not have to considerably over do, some little will do. The term over-exert covers going over your limit (weather is significantly or not). My reaction of the PEM is different depending as of how much I over-exert myself...