I am doing great on symptomatic treatment = sleep, OI, inmune mods, and anything I need!!!
I have kept a job and a family! That is more than the CBT and GET people ahve been able to hold! If they step aside, the symptoms on Cfs are not that uncommon that cannot be treated until we get a cure or...
Is all about liability legally. They will never admit wrong. If they do, they can be sued for any person that was harmed by those recommendation.
Removing it is the right step on the right direction. Best we can ever hope for.
I am sure the first step is a campaign to doctors that this is not psychological, the best way is to distribute a very short video of blood under microscope of a normal cell on CFS serum. Then wide distribute on places general population and doctors have access (We demonstrated we can trend as...
Mine were both low Ts and NKs (number and activity) not sure knowing this has helped me at all, since I cannot raise them no matter what I do (prescription drugs and supplements).
When I read, this all I could picture was Alem on his bed and Peter White on that picture with the princess, like side by side picture.
Is the perfect picture illustration of the fracked up situation.
I think yet again this is a sub group, I also believe some of us have another cause for the leak.
I got my pressure meassure and it was ok. But I could swear I have leaks. I get this bump, pressure like and a few days later I feel some liquid spilled. Burns like hell, kind of like head acid...
If you bring to judge your serum, put one of judges cells in your serum on a big tv and show the judge how his cells poops on your serum, would be a win I would say! :)
2) get a juror or anybody to perform a 2 day Cpet test ( healthy vs you) you could prove Cfs.
3) get a professional Cfs doctor...
Question.
If Dr Davis ( or assigned person) makes a 2min video and do healthy the cell on Cfs serum. And demonstrate this is a physical disease and publish it or present it to all the equivalents CDCs and NIH world wide (not sure what they are called).
Couldn’t we demonstrate biological cause...
Well, we are at crossroads now, If ME plp don’t go and they are controlling whatever agenda they have, then nothing we can do afterwards.
If we split, we loose impact hmmm
This is why it really calls my attention plp still think Simon W, EC, Peter White.... do what they do out of conviction of BPs model vs all about what it is= a scheme to keep Cfs psychological for denying benefits.
A clear article and reference would be nice to be publish where we can refer back...
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