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Priceless!!!

There are tons of things like calcium channel blockers, another drug for those high BP but cannot remember, ivabridine....

Best thing that ever happen to me. I don’t use today but was a great drug to get me out of bed. You will need other things since usually this alone won’t do it ( I do midodrine+betabloker) If you have been blessed to be able to try, i would try it, worst case you can stop it if it does nothing...

So nothing found? I am confused

Let me give you my 2 cents, All this effort is not naivite. Is a very well coordinated spider web of insurance, government disability and the BPS machine worth millions of dollars. Each writer, reviewer... That has been confronted does not back down. There is too much money at risk to leave it...

THis is what we are missing more organized (shaming goverment and psys) campaign.

Wait this is new? I don't think they had anounced the department. David Tovey, editor-in-chief of The Cochrane Library, reports to Politiken that they have chosen to shift responsibility for the review from the Cochrane Psychiatry Group and probably to the author group looking at chronic disorders.

Aerobic excercise is not good idea for Cfs.

As I remember, in court they could not produce any evidence of such threats, and in court transcript was said that claims were exaggerated and was not real at all. So we can use the court transcript ( I think was on the Aleem case when they tried to hold back the FOIA requests where the judge...

I ask myself the same thing. I even help however, raise money... we need plp that know about the field to take the lead on this one.

If Only they would listen to patients, the Ramsey days (the why of the name ME). I think you are spot on, and it is the inflammation creating the pressure and symptoms, because I feel my spine and brain on fire, and can feel the inflammation (my neuro said is impossible). But maybe if they do...

This should be published in main stream media, is amazing to me that a lot of patients still think the situation is becuase government is ignorant and not the well made plan to avoid disability payments. This needs to be public and well shared so when they come w some BS talk that We are working...

I also have paralytic episodes. They are not due to muscles ( I got tested properly by Cleveland clinic). I do not have EBV active currently ( tested properly) I also have the shakes ( kind of sizures but not a seizure). I am VERY active for a Cfs patient. And I had an episode 2 days ago. I...

The ME/CFS community is not strongly counting on the numbers. If we were to demonstrate the epidemic, they would have a nightmare on their hands. I know a few people w Cfs that are not diagnosed as Cfs and when I hear details I am 100%sure they have it. Doctors still some don’t believe in it (...

And maybe a study on people like me that gets remission on colds and viruses. Before, during, after and see what changes.

I have heard they can go into remissions to be worst after giving birth. Do not remember a percentage or how often.

I was after giving birth. I just heard of two more cases the same. I wonder if it is not what they give us like shots or the drugs for delivery?!

They are definitely 2 different things. I think the problem is where patients worst off, have it all toguether confusing things. I had progressive onset ME. Have bad OI bouts seperate from ME so I can tell them all part easier. You do not need muscle fstigability to have PEM. I think this...

For health, I would be willing to sell a kidney! ( joking... not really ...but you get my drift). Cost I would sell everything I own or do whatever once I have energy. Is the access that kills me.

So unless everybody moves close to center we will not be Abel to access :( since they make it mandatory to be done on the centers 3 or 2 times a week for 3h!!! That is a part time job.