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I do. It's what happened to me. I knew I could not stand and work at the grill anymore when I was 17 so I got an office job. I never said anything to my doctor. 15 years later another doctor put me through a tilt table test and I fainted. He said nothing to me about OI or its connection to CFS...

Yes. I take Tizanadine for sleep. Two 4mg pills at 8 PM and Two 4 mg pills when I awaken between 12-3 AM. It isn't perfect and sometimes I will still break through but overall I can sleep. I don't have all of your symptoms that you relate but those I quoted I do have.

It's finally back up. 3:35 PM EST

I think it is a better Fibro drug than for ME/CFS but, I have Fibro and it didn't work on that either.

I think I used it for six months but it might have been nine. I can't remember how many times I renewed the Rx. It doesn't work and I am disappointed that this is the path they are pursuing.

Down since last night. :(

It won't have any influence. The only thing that can be said about it is it's on record.

It did nothing for me. Money out the door.

I think ME/CFS, defined by SEID criteria, have occurred by stressful events. I think it is on the CDC's ME/CFS website. His metabolic research with Dr. Navieux also found stress events could result in a CFS diagnosis but I don't know which criteria he used. Even if he used Fukuda, the...

ugh...it would be a shame if they got the money. Their biomarker research is ridiculous. In the US, no researchers are heralding their "discovery".

But, I don't see anything about OI, Sleep disturbance, or cognitive dysfunction worsening after exertion, in MG especially 24-72 hours later. Just because you might have a symptom that gets worse after exertion in a disease does not mean that all your symptoms get worse especially days later...

I think this is what happened.

If PEM is not unique to ME or ME/CFS, it can still only worsen the symptoms-set unique to a disease. So, unless other diseases also have all the following: unrefreshing sleep, cognitive dysfunction, orthostatic intolerance and others listed under the SEID and CCC criteria, it would be pretty...

Moderator note: this thread has been moved from one about AfME documents here https://www.s4me.info/threads/action-for-mes-documents-me-and-work-and-and-employers-guide-to-me.8421/ I wonder if MEpedia should have a Primer for employers @JaimeS @JenB They are pretty much a copy of one another...

Thank you. I guess I am not really familiar with all of this. I will practice.

Yes, just saw the capture. But won't let me capture a Lancet article. Tried searching it, too. Nothing.

I can't capture this page either. It looks like the BBC article above was captured and I did not realize it although it should not give me an error, why not just let me save it again. https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(06)68662-5/fulltext

This link won't update on Wayback and I don't know why. I run into little things like this. https://www.bbc.com/news/uk-12195884

Those citations are very important. Thanks for doing them.

I can't do anything on a regular basis either. I just can't be responsible for something like this. Oh, and I only did the pages, not their references one by one. Just to note here: I also did PEM and Pediatric ME/CFS and List of symptoms of ME CFS. Also Lady Gaga, all the Fibro pages, not just...