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Thanks to the APPG who have been added to the list of signatory groups/organisations, now standing at 70.

Effort preference is definitely going to get picked up on

Blimey that’s OTT by Hornig “a tour de force” is she related to Wallitt or something.

Just the right tone

The candidate I’ve spoken with has said she will join the APPG if elected

Well we know from her talk about pacing at one of the CDC dial in presentations in 2018 that she’s a big fan of “pretty water coloured memories of the way we were” from her attempt to get everyone singing.:whistle:

that’s taking it to a whole other level

Great he highlighted that awful patronising Chalder et al video.

The vast majority are not managed by anyone in NHS

For an election at the same time as the local elections on 2 May it will need to be called in just over 5 weeks time.

if it was down to me objective measurements would definitely be addressed. I guess I was being pragmatic focusing on the product in front of me and the prospect of moving on from the status quo.

I think that it is very sensible timing.

The lack of action on this is disgusting considering how simple a task it would be given the wording could be drawn from the NICE guidelines.

Yes I saw that very severe is included in the description of the person completing the questionnaire’s overall level of ME, I’m one of those who had undiagnosed “mild” ME/cFS for years until it worsened to current Moderate and I got diagnosed. I will have to go back through on my iPad to see...

Given we could be having a general election any time from May onwards it is the twilight of this Parliament. Hopefully the APPG can pressure Dept of Health to finalise their plan we will see. I have been talking to a person who will be a candidate and stands a chance of election. I said...

Comment posted by Dr Charles Shepherd on ME Association Facebook post about the C4 News report “Very good media coverage of what happened to Merryn. Thank you Channel 4. I will be meeting Carol Monaghan MP tomorrow at the APPG meeting where severe ME/CFS and delays with completion of the DHSC...

Bearing in mind that CFS clinics use stuff like Chalder questionnaire HADs etc having a product that can be used to move them away from that will be better. I don’t claim this is an ideal solution but having a framework that actually focusses on the symptoms pwme experience, how ME impacts on...

GHQ 30 blimey I would imagine the population at large would tick 5 of those

I hope Prof Matthias Kohl will be able to provide such reviews of many more such papers also then possibly publish himself on persistent flaws in psychosomatic papers

https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review Current total is 10,498