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Pathetic innit.

Rehashing the same old PACE style thinking online won’t make it have any benefit.

Oh so now we have “perceived” injustice to add to pain “catastrophising” and their shopping list of gaslighting terminology. Do they actually notify the patients that the questions they spend valuable time and energy answering will be used to classify them as catastrophising and injustice...

That’s much more like it as a question. Focus on key issue of very severe and malnutrition. Can’t answer without addressing the topic. Given the response is unsurprisingly initial and waffly about “discussions how best to take forward this action” there is ample scope for regular follow up...

the office was good but that wasn’t by any means just down to him the group of actors were excellent and of course Stephen Merchant As a stand up meh. Others do the grumpy sarcastic middle aged brit bloke far far better not least the late Sean Lock and the still with us Jack Dee and Stuart Lee.

Perceived “hassles” triggered by perceived “niggles”or vice versa. Whatever. Perceived innit.

Admittedly I only skim articles this long but my reaction was just to feel sorry for the ill people involved who seem to be between a rock and a hard place.

“Hassles” new pseudo term deserving to be right up there with “Catastrophising” In markers to identify clueless “researchers”

Nope

for this group I think they usually have low numbers of participants so probably seems large to them

I was explicitly told by a GP in her 30s in 2015 - we prefer not to give that diagnosis (CFS) it is better to treat the symptoms- so some are trying to avoid it altogether - anxiety, depression etc etc

I also agree un refreshing sleep could be described better.

i was “lucky” with pregabalin as I had such a bad initial experience that I reduced right down to a very low dose and I soon decided to only take it when neuropathic pain was high. Then I had a further bad experience when I took the low dose 3 consecutive days and woke up with internal tremors...

Agree anyone taking tricyclic is at risk of sedation hangover as my GP at the time called it. I used to get that and stopped getting the benefit of earlier sleep onset so I decided to stop. I don’t feel sedated when I wake up I feel worse ME symptoms notably body aches & slow thinking. I...

Interesting question. I think the circumstances of any PWME being in contact with someone working using BPS thinking would be very relevant. When I went to the CFS clinic 9 years ago I was only one year diagnosed and didn’t know all the politics and history. I was still trying to keep...

There is so much tripe out there some of it has been recycled so often the stench can be smelled virtually. Sadly many of the “LC researchers” appear oblivious to the utter lack of originality of their concoctions.

Six hours wtf even my PACE-lite weekly group sessions at the CFS clinic 10 years ago were only 3-4 hours long.

Likely quite a bit of this is down to the APPG

Symptom-titrated strikes me as a term designed to give pseudo scientific “accuracy”

Started Very mild/mild (oblivious to having ME//CFS) no obvious individual trigger. Regular unexceptional flu type illnesses over roughly a decade gradually worsening, alongside onset of menopause Prescribed Lyrica for pain its sedation contributed to a fall resulting in bad sprain on both...