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Yes it's all very distressing to read even for someone like me who won't be affected by the changes. I reach that "magic number" in less than a year when I will be given even more money without having to prove I can't work and will be viewed by the rest of society as deserving of that money...

I think she later admitted that the one patient she mentioned didn't actually exist and was just an amalgam of ME/CFS patients she had seen. Which was very dishonest of her.

Benefit changes Green Paper https://www.gov.uk/government/consultations/pathways-to-work-reforming-benefits-and-support-to-get-britain-working-green-paper/pathways-to-work-reforming-benefits-and-support-to-get-britain-working-green-paper From BBC website: Jobseekers' Allowance (JSA) and...

This is what did happen to me back in 2009 regarding my mortgage illness insurance with the Halifax. I filled in a request form and for two years sent them my sick/fit notes every few weeks and they paid my monthly mortgage amount. I took out that insurance and when I qualified for it they paid...

I presume this is the previous sensor here. https://lumiahealth.com/ eta: which I think is discussed in this thread https://www.s4me.info/threads/monitoring-carotid-blood-flow-using-in-ear-wearable-device-during-tilt-table-testing-2023-hemantkumar-tripathi-md-et-al.32549/

https://www.gov.uk/government/statistics/esa-outcomes-of-work-capability-assessments-including-mandatory-reconsiderations-and-appeals-march-2025/esa-work-capability-assessments-mandatory-reconsiderations-and-appeals-march-2025 This is a summary of the latest Accredited Official Statistics on...

https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1192352&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0 On Monday morning this week, Benefits and Work was contacted by a number of mainstream media outlets who had all been given to believe that the Green...

Yes that is what I had to do this morning, ask them to provide an upload link in my To-do list, which they did. Seems strange to ask somebody to do something without providing any way for them to do it.

I have just received another request from the DWP to send them more bank statements from 1st November to the 28th February 2025 (which will mean they will have 8 consecutive months of my bank statements) and also a new driving licence check code from the DVLA allowing the DWP to access my DVLA...

BBC article covering the study. A new part of the immune system has been discovered and it is a goldmine of potential antibiotics, scientists have said. They've shown a part of the body known to recycle proteins has a secret mode that can spew out an arsenal of bacteria-killing chemicals. The...

Abstract For decades, antigen presentation on major histocompatibility complex class I for T cell-mediated immunity has been considered the primary function of proteasome-derived peptides1,2. However, whether the products of proteasomal degradation play additional parts in mounting immune...

Some background information on this line of research https://meassociation.org.uk/2024/08/explaining-electrophysiological-properties-of-cells/

"Based on this result, vitamin D levels may serve as another possible biomarker for ME/CFS". If ME/CFS was associated with vitamin D levels we would have known about this decades ago.

https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1192146&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0 Benefits and Work Guide monthy newsletter GREATER PROPORTION OF PIP FACE-TO-FACE ASSESSMENTS PLANNED The proportion of PIP assessments that are...

Abstract Background Long-term COVID-19 (LC), which may affect the autonomic nervous system (ANS), is the term for the symptoms that some patients had for an additional month after contracting the virus. Therefore, during the LC phase, ANS status was evaluated in patients with mild-to-moderate...

Dr Charles Shepherd signs letter to Cochrane regarding the review ‘Exercise therapy for chronic fatigue syndrome’ https://meassociation.org.uk/2025/02/dr-charles-shepherd-signs-letter-to-cochrane-regarding-the-review-exercise-therapy-for-chronic-fatigue-syndrome/

107,000 views in 22 hours. 1,198 comments.

I took it to mean vaccination before getting infected resulting in LC "This study aims to analyse the association between complete vaccination prior to SARS-CoV-2 infection and the subsequent development of long COVID"

The ME Association has covered the news America: ‘Virus Hunter’ Ian Lipkin calls for Long Covid and ME/CFS to be studied together February 6, 2025 “ME/CFS and long Covid share profound similarities, including post-exertional malaise, cognitive dysfunction, sleep abnormalities, and immune...

https://www.lidsen.com/journals/neurobiology/neurobiology-09-01-267 Abstract Following mental or physical exertion, patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) experience Post-Exertional Malaise (PEM). Although self-report questions represent less expensive and...