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  1. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    It is irrelevant whether they are endorsing them or not, they are publicising them to their members and the public. To mention five pyschological studies and not mention a single biological study such as the large number we mentioned yesterday on this forum seems to me to be a bias towards...
  2. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    All five of them psychological in nature. Experiences of pupils with CFS. Attitudes towards people with CFS/ME. Transforming healthcare of ME/CFS through Arts. Sensory experiences of ME/CFS. Young peoples experience of pain. If anybody still had any doubts about Action for ME being firmly in...
  3. John Mac

    Open The Influence of Epigenetic Modifications and Post-Exertional Malaise in People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2021 Polli

    Not yet recruiting https://www.medifind.com/conditions/chronic-fatigue-syndrome/1135/clinical-trial/223304133
  4. John Mac

    Open The ME-SH (ME in Stockholm-Harvard) Study: Structural Problems in Brainstem and Cervical Spine Cord in (ME/CFS) - a case control study 2021 Bragee

    Full title: The ME-SH (Myalgic Encephalomyelitis in Stockholm-Harvard) Study: Structural Problems in Brainstem and Cervical Spine Cord in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome(ME/CFS) - a Case-control Study Not yet recruiting...
  5. John Mac

    Open Australia - USC's Thompson Institute Chronic fatigue syndrome (ME/CFS) study Aug 2020

    Seeking healthy adults with a sedentary lifestyle for world-first study https://www.usc.edu.au/current-students/student-news/2021/march/seeking-healthy-adults-with-a-sedentary-lifestyle-for-world-first-study
  6. John Mac

    Frontiersin.org list of 48 ME/CFS articles, 2021

    Done except: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer, 2017 which I can't find
  7. John Mac

    Aluminium based adjuvants and a disease hypothesis by Gherardi

    Merged thread Biopersistence and brain translocation of aluminum adjuvants of vaccines 2015 Gherardi et al https://www.frontiersin.org/articles/10.3389/fneur.2015.00004/full
  8. John Mac

    Unperturbed Cytotoxic Lymphocyte Phenotype and Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients 2017 Theorell et al

    https://www.frontiersin.org/articles/10.3389/fimmu.2017.00723/full Correction article https://www.frontiersin.org/articles/10.3389/fimmu.2019.00350/full
  9. John Mac

    XMRV and Public Health: The Retroviral Genome Is Not a Suitable Template for Diagnostic PCR, ... ME/CFS, 2017, Panelli et al

    XMRV and Public Health: The Retroviral Genome Is Not a Suitable Template for Diagnostic PCR, and Its Association with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Appears Unreliable Panelli et al https://www.frontiersin.org/articles/10.3389/fpubh.2017.00108/full
  10. John Mac

    The Neuroinflammatory Etiopathology of ME/CFS Glassford 2017

    Full title: The Neuroinflammatory Etiopathology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) https://www.frontiersin.org/articles/10.3389/fphys.2017.00088/full
  11. John Mac

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Full title: Reduced endothelial function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - results from open-label cyclophosphamide intervention study Provisionally accepted https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/abstract
  12. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Medically Clear Long-Haul COVID: A Contested Illness is Born Ballard, Dustin MD Sees Long Covid as a problem for doctors https://journals.lww.com/em-news/Fulltext/2021/03000/Medically_Clear__Long_Haul_COVID__A_Contested.12.aspx?context=FeaturedArticles&collectionId=3
  13. John Mac

    Frontiersin.org list of 48 ME/CFS articles, 2021

    A listing of 48 ME/CFS articles featured in frontiersin.org May be of use for any missed articles. https://www.frontiersin.org/subjects/myalgic-encephalomyelitis-chronic-fatigue-syndrome
  14. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Are those right words "I have fully recovered, I have fully recovered, I have.........."
  15. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sorry to hear about the very difficult 11 months you've been experiencing @Ariel We can only hope that the research into Long-Covid will give us some answers to our health problems.
  16. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I don't know if this question has already been asked but if we didn't know that Covid-19 existed as a virus what would all those people suffering from Long-Covid have been diagnosed with if they had gone to their doctor with the set of symptoms of Long-Covid but with all the blood tests coming...
  17. John Mac

    Open Analysis of Post-exertional Malaise Using a Two-day CPET in People With ME/CFS, 2021, Ithaca College

    https://www.centerwatch.com/clinical-trials/listings/225957/analysis-of-post-exertional-malaise-using-a-two-day-cpet-in-people-with-mecfs/?&radius=50&query=chronic-fatigue-syndrome&smt=true
  18. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    'Don't suffer in silence': Wigan long Covid sufferer urges people to get help “It’s like hitting a brick wall and I’m always tired and breathless.” My bolding https://www.wigantoday.net/news/people/dont-suffer-in-silence-wigan-long-covid-sufferer-urges-people-to-get-help-3142115
  19. John Mac

    Psychological well-being and illness perceptions in patients with hypopituitarism, Knoop et al, 2021

    About hypopituitarism but mentions chronic fatigue syndrome. Knoop is among the researchers. https://link.springer.com/article/10.1007/s11102-021-01131-w
  20. John Mac

    Dysregulated Provision of Oxidisable Substrates to the Mitochondria in ME/CFS Lymphoblasts, 2021, Missailidis et al

    https://www.mdpi.com/1422-0067/22/4/2046
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