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  1. John Mac

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    A way to celebrate the news may be to donate to David Tuller's crowdfunding. He's almost there 95%. https://www.s4me.info/threads/crowdfunding-trial-by-error-reporting-on-me-cfs-me-cfs-medically-unexplained-symptoms-and-related-stuff-fall-2021.22600/...
  2. John Mac

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2021

    Just donated to celebrate the good news on the NICE guideline being published tomorrow.
  3. John Mac

    United Kingdom: ME Association governance issues

    Well done to everyone involved in highlighting what Professor Findlay has been up to. A victory for common sense.
  4. John Mac

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    I wonder how many of these supposed communists were in fact infiltrators paid by the security services to find out what these organizations were up to. If the security services weren't infiltrating them then they weren't doing their job properly. Then when communism collapsed and the threat had...
  5. John Mac

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Michael Beadsworth, consultant in infectious diseases in Liverpool is very much BPS "Don't be afraid of exercise" is what he said to me. ETA: Dr Alistair Miller was his boss at the hospital at one time.
  6. John Mac

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Yes strange he's been invited to a quackfest but then they must feel comfortable about the DecodeME study what with Action for ME being so heavily involved with it.
  7. John Mac

    Trisha Greenhalgh on ME/CFS and Long Covid

    "Show me someone with Long Flu.....err" I thought Sly Saint's reply to this on the Long Covid thread was an excellent point. "how quickly they forget......... Yuppie Flu?"
  8. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for the translation into english @strategist
  9. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sorry don't now how to copy from Twitter so just a screen grab. But what on earth is she saying? Not important but she is a prehistorian and her Twitter name is preshitorian. Is that a typo or is she being ironic?
  10. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    Right, so it's all just coincidence then! Or maybe they heard of the criticism they were receiving on here and posted the link to our list of biological studies as they felt a need to respond to it. So a victory of sorts for ME patients, forcing a charity that supposedly represents ME patients...
  11. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    @Andy has there been any contact/communication between Science 4 ME and Action 4 ME in the last few days? It would appear we are starting to co-ordinate activities, we repost their listings, they repost our listings, or is it all just coincidence?
  12. John Mac

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Perhaps a video of our own on Youtube were we have control of the comments section. I thought about doing it myself but I'm pretty useless at that sort of thing and I know there are many talented people on here who would do a much better job.
  13. John Mac

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The LP coaches advertise their 'product' on Youtube. I down voted some of them and posted comments explaining the problems with LP (along with a few other people) but ALL critical posts were removed and the Like/Unlike system was disabled. It seemed odd to look at the remaining positive...
  14. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    It would be interesting to know what Action for ME's role in the DecodeME study is. I sincerely hope they will not be having any say on selecting the patients for this. I was twice thrown off a biomedical study by Liverpool University at the request of the Liverpool CFS clinic. The patients...
  15. John Mac

    Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial (BPS) model of disability, 2016, Shakespeare et al

    Are we going to see all the BPSer's going down with Long Covid and then miraculousy recovering?
  16. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    It's still got the same person as it's head who was very happy taking medical advice from BPSer's.
  17. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    From 2010 to 2015 Dr Alistair Miller was Action for ME's "Medical adviser". Esther Crawley was their sister organisation AYME's "Medical Adviser". Would you say they aren't firmly in the BPS camp?
  18. John Mac

    Open UK: Action for ME's list of current research projects recruiting.

    I don't know, maybe you should direct that question to the organisation that supposedly represents the interests of ME patients in the UK.
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