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He keeps asserting that PEM is caused by the brain learning to respond to activity with symptoms. There isn't any evidence of this anywhere as far as I know. That he is on a mission to spread unproven ideas as facts makes me wonder what his problem is. Is he desperate to make PEM seem like a...

Can you describe it?

I have both diagnoses and have wondered whether my ME/CFS might have been misdiagnosed autism. I ended up rejecting this idea. Autism is associated with autistic burnout which has not been studied much. Autistic burnout is attributed to "chronic life stress and a mismatch of expectations and...

Telling a child that their emotions are causing serious chronic symptoms is child abuse, unless it was actually true. It sets these children up for years of feeling like a failure when they fail again and again to somehow cure themselves, and it distorts their perception of reality when they...

The author, despite citing the IOM report, has understood nothing. My CPET was normal and I now I'm even able to do sports, but I'm still seriously limited in my ability to carry out ordinary daily activities. The limitation is in the amount of time per day that I can do things because for some...

I never have a day with no abnormal tiredness. If for some reason I had a day like that, I would think that excitement and exceptionally good mood were keeping the body in an unsustainable high and delaying the fatigue, and that the next day would probably be especially bad. The 37% group could...

Treating oxidative stress has helped restore my muscle function. My brain didn't benefit as much.

Back when I had frequent hypoglycemias I was told I might have high insulin sensitivity.

I wonder why interacting with her is so much easier. I'll add this to the list of things I must discover.

Something interesting happened. In spring, I traveled to see my grandmother. She often had guests and one of them was a woman who I got along well with. She is 52 (I'm 39). We agreed that the next time I was visiting, we would be doing something together. I went to see my grandmother again, and...

A cluster 3 patient would be a patient for whom fatigue is the worst symptom. They would have other symptoms but usually of low to moderate intensity. I always thought of sensory nerve abnormalities (pain, abnormal sensations, lack of sensation) as being the main symptoms of SFN but this study...

These responses occur immediately though, right? That doesn't fit with PEM. I always thought that what happens in these examples is a sensitized CNS that cannot handle any further sensory stimulation. I conceptualize PEM as a delayed response.

In cluster 3 the fatigue tends to be the worst, or one of the worst, symptoms.

I found this interesting because it claims that in small fiber neuropathy, most patients had intense fatigue, myalgia, and subjective weakness and lower intensity of neuropathic pain. https://www.medrxiv.org/content/10.1101/2024.09.09.24313341v1.full.pdf

Exercise leads to the release of a wide variety of substances, in the category of exerkines. https://www.nature.com/articles/s41574-022-00641-2 What if one or several of these exerkines were blunted in ME/CFS or, for some obscure reason, had a damaging effect instead of a health-promoting...

RFK Jr. said he wants to "Make America Healthy Again by ending the chronic disease epidemic." I like how that sounds but good intentions aren't enough. He seems motivated, but you also need competence and he comes across as lacking critical thinking. Maybe he will be able to do some useful...

Sounds like small fiber neuropathy or similar illnesses. I suspect at the time of Freud these were unknown or very underdiagnosed.

I use a nasal spray and a mask in public transport or crowded indoor spaces like hospitals or supermarkets. The mask interferes too much with talking so I don't use it when social interaction is required. I also try to minimize unnecessary indoor activities. I also wash hands before eating at...

I had this for a while together with orthostatic intolerance. Do you have orthostatic intolerance? Have you tried treating it? Do you have small fiber neuropathy?

I wanted another opinion to see how worrying it is. I suppose that if it gets worse I will need to do something about it.