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Showing an association between certain emotional states and these disorders and treatment responses does not mean the emotional state is driving the disorder. It could just as well be the other way around, that the disorder is causing the emotional state.

They seem to be saying that the change they want can only be achieved with the help of patients (among other stakeholders) That means it won't happen, ever.

The vast majority of ME/CFS cases are not preceded by a serious infection requiring hospitalization. What is causing the symptoms in these typical ME/CFS cases may be quite different from what is causing symptoms in people who were hospitalized for covid. Long covid is a broad category that...

I agree. Overwork is not a medical condition. The solution is to work less and in better conditions. It's not a problem that a doctor can solve, this is something the employer and employee need to handle.

I wonder if these attempts to find a link between emotions and fatigue are due to a misunderstanding of what patients are actually experiencing. The researchers are, I suspect, misinterpreting descriptions of fatigue by sick patients as various negative emotions, like feeling disappointed, not...

The acute flu is worse than my ME and obvious. My ME is insidious and, at low activity levels, causes only mild symptoms that aren't visible. It is aggravated by exertion in a delayed manner and I'm continuously learning to do less than I would like to. This leads to a lifestyle that invites...

Having the flu every now and then is sufficiently different from having ME all the time. The flu doesn't give you delayed reaction to exertion, although the reaction can feel similar.

The root of the misunderstanding of ME is this: normal people can comprehend difficulty with intense exertion because of their experience with sports, but struggle to understand difficulty with sustained exertion because they can't reach the same state of exhaustion that we experience, and...

We need a test to document the inability to sustain exertion over time. Something that can show that in comparison to an average person of the same age, people with ME struggle to keep going. Exercise testing has focused on short and intense sessions and maximal performance. But the problem is...

Can you elaborate on this? Is it for example the idea that everyone experiences fatigue, but that ME/CFS have somehow trained their perception of fatigue to such extreme sensitivity that they feel like they're experiencing a level of fatigue that is normally present in major illnesses? Or is...

In my opinion, retrospectively inventing an inspiring narrative can occur in the reconstruction phase of one's life, after the illness has significantly improved. This occurs because we want to give value and meaning to what happened. We also want to explain to others why we were missing from...

I was diagnosed with small fiber neuropathy via skin biopsy. I'm trying to understand my health issues and I'm wondering if it's possible to have a painless form of SFN that presents with fatigue, poor sleep, exertion intolerance, mild intolerance of upright position. I later developed more...

But the brain is a physical organ. And co-occurrence of physical changes with mental illness is entirely consistent with a view of illness where the mind is a function performed by the physical organ brain. One gets the impression the "mind body dualism" discourse exists to strawman the...

My dislike for psychological and psychosomatic approaches was the result of its failure to help and the harm it caused. Claiming that a person has the ability to learn to control their symptoms, without actually knowing whether this is true for an individual, puts patients in danger. Once my...

The mention of Whiskott-Aldrich makes me want to ask if this is potentially closely related to the WASF3 finding? WASF3 is the Wiskott-Aldrich Syndrome Protein Family Member 3. WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic...

I haven't looked at the files, but my guess is that the .raw files are the reads of the mass spectrometer. In the Data Processing Protocol section they describe how to analyze it. There's also a download of data in JSON format which might be a more processed form of the data. What Kitty has...

I'm feeling more secure about romantic relationships now and have opened more to people. I'm able to be affectionate and warm and show genuine interest in people.

Something similar to learned helplessness, then. That is how it must look to the outside to people unaware that others can have bodies that don't behave like theirs. They wonder why don't we just get up and return to a normal life. We tell them it's not possible but they interpret our words as...

Isn't this just a less blunt way of saying that disability is caused by attitude to the problem, not the problem itself? I think he's just expressing frustration that ME/CFS isn't treated as disease. I agree. Whether someone is taken seriously should not depend on being able to prove that...

It sounds a bit like "physiological dysregulation predicts later physiological dysregulaton by another name". The usual circular thinking in the psychosomatic field.