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Merged thread The study found out that LC patients have inability to extract oxygen in the peripheral tissues, for example, the muscles A normal pulmonary exercise test consists of riding a stationary bicycle with a mouthpiece that measures oxygen consumption. In the invasive test, a catheter...

I dont know if another team will try to replicate this study in ME/CFS patients but there was a japaness team which I think replicated it in covid patients. I dont have any scientific background so I am not able to judge the quality of these studies. Here is the link...

Ok, now I understand what you mean. I dont do high intensity because then I dont feel good. But maybe what is interesting and I think it´s applicable in the majority of ME/CFS patients - Before I got ME/CFS I was professional footballer. I was lucky and for the first 8 years of my sickness I...

Well, i just speculate, i dont have any scientific background. Some weeks ago i read a paper that 90 % of metabolic dysfunctions are treatable. There are many diseases where you dont understand the source of the problem but you are able to treat the consequences of the problem. Maybe it's not...

Many studies including this from Fluge/Mela suggest metabolic disfunctions in ME/CFS. Is it not time to check the exact metabolic profil of some patients and to try to treat their metabolic problems to check if it improves their health?

I lead slovak ME/CFS group and i also follow some slovak long covid groups. To my knowledge there is already one clinic for long haulers in Nove Zamky. But how you write they are mostly focused on detectable organic problems. Btw the petition for clinics goes very bad. The people dont sign it...

How far are we from proving this hypothes?

i got my first vaccine - Pfizer 2 weeks ago. At first i felt ok but after 1 weak i started to feel weak, kind of heart weakness and i feel big lactate accumulation. Especially that lactate accumulation is very unpleasant. Doos anyone has the same experiances? I am not sure if i shoul take the...

What about to check the patients like me. I work part time, i pace a lot, i do 7000 steps a day so i cannot be deconditioned. Still many heart problems. So maybe if we check the patients like me, we would see if the blood volume is there because of few fyzical activity or if it's generally a...

I think we should stop to talk about the role of deconditioning. It's certainly a small issue especially in severe cases but not the main problem. I am a goog example. After years i got lucky and stabilised my health. Today i work par time, if i pace i can easily walk 7 000 steps a day. So...

I really like this hypothes. How difficult it is to prove that there is that problem with tissue hypoxia and endothel dysfunction?

I ask if this "air hunger" or "breathlessness" or what it is - if it´s not because of muscle weakness, accumulation of lactic acid in muscles or histamin intolerance (breathlessness is one of the symptoms). I have ME/CFS for 20 years. I went through different stages - now I am stabilised and...

will we see the numbers from all countries or just from the best ones? I am from Slovakia and I would like to see our numbers. At least it was me who completed the survey :-) We promoted it in our facebook group.

great, we promoted the survey in ME/CFS czech and slovak facebook group. The languages are almost the same - so the slovaks will understand as well :-)

I have one question. I have been diagnosed with CFS. The term ME doesnt exist in my country. Should I answer the question "Do you have me?" - Yes, I have been diagnosed with ME?

In the last years I read a lot of ME/CFS research studies and theories about what could be wrong in ME/CFS. I understand that research progress is very slow but I would expect that at least 1-2 of those theories will be already confirmed. I have impression that the research got stuck. What is...

It´s great to see that the numbers of subscribers for this study are growing so fast. I think nobody expected it. If I remember correctly the study should start early next year. But is it possible that it starts earlier if we reach the goal 40 000 subscribers already in few weeks?

Thanks Simon for your blog :-) Maybe it´s stupid question and maybe it´s even not possible to answer it but how difficult it can be to find that "something in the blood"? I find this interesting: Davis has previously talked about his team’s work to home in on the presumed “factor” in the...

Hi, I would like to support some research activities. I know some of them in US like OMF, SOlve ME/CFS Initiatives. I think they have good marketing and are able to collect interesting amount of money. But maybe it would be also good to increase our research capacities in Europe. Do you know...

I didnt follow the conference. Were there any interesting findings from research groups which woul bring us further to understand ME. Is it already sure that mitocondrias are altered by something in the serum?