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  1. Emily Taylor

    FY19 Funding for ME/CFS restored

    Good news! The ME/CFS line item at the CDC was funded in the recent budget compromise announced today. Committee report language was included, unedited, from advocacy efforts earlier this year.. You can see SMCI's statement here...
  2. Emily Taylor

    NIH Advocacy Opportunity

    COMMUNITY PARTICIPATION OPPORTUNITY FOR NIH LEADERSHIP COUNCIL The National Advisory Council of the National Institute of Neurological Disorders and Stroke Council (NINDS)—part of the National Institutes of Health (NIH)–will meet in Bethesda, Maryland on September 12-13 to discuss upcoming...
  3. Emily Taylor

    CFSAC charter has not been renewed. Solve, #MEAction and Occupy ME all call for action.

    Thank you for sharing! If you have questions, feel free to ask me directly here or by e-mail at etaylor@solvecfs.org
  4. Emily Taylor

    SMCI webinar Lisette Duarte, August 30, 2018, on children/schools

    Apologies we did not specify! Yes, this is a parent-focused workshop for United States Federal education protections/supports that can be utilized for students with ME/CFS. This is Part 1 of 2.
  5. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    July 19, 2018 Webinar “Crossroad of the immune response and the microbiome: Impact on ME/CFS” Watch this webinar led by Derya Unutmaz, MD, Professor and Principal Investigator at The Jackson Laboratory for Genomic Medicine.
  6. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    SMCI joins Open Letter calling for Reanalysis of PACE Trial Data Dr. Sadie Whittaker, Chief Scientific Officer for the Solve ME/CFS Initiative, joined more than 90 international clinicians and researchers in a second open letter to Richard Horton, editor of The Lancet, and cc’d the three lead...
  7. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    Becky McNeil presenting on the promise of a collaborative research network model in ME/CFS at the 1st Canadian Collaborative Team Conference for ME/CFS Research in Quebec Learning more about the ME/CFS Data Management Coordinating Center with Dr. Becky McNeil RTI International, a non-profit...
  8. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    “Hot Areas in ME/CFS Research” Webinar Q&A Follow-up with Dr. Anthony Komaroff On May 24, 2018, Anthony L. Komaroff, MD, Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital, presented on “Hot Areas in ME/CFS Research.” The...
  9. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    Preliminary Results from Ramsay 2016 Projects Team 1 & Team 5 In 2016, Solve ME/CFS Initiative launched the first cycle of the Ramsay Award Program. The Ramsay Awards are foundational to SMCI’s commitment to explore all worthy research avenues. This program aims to move the field forward by...
  10. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    Meet ME Award: Katya Lavine and “Thinking the Future” Symposium “Excuse me,” a young man tapped me on the shoulder in the lobby outside of the conference. “What is M.E.?” We had a short interaction, but a significant one. I explained the basics of M.E. and the purpose of our conference. I...
  11. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    Research Highlights from 2018 So Far: Notable Study Developments The first half of 2018 has yielded over 100 publications specifically addressing various aspects of ME/CFS. Reports encompass familiar domains such as neuroimaging, cytokine abnormalities and NK cell function, as well as...
  12. Emily Taylor

    SMCI Monthly Update Thread - July 2018

    Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan...
  13. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    In Case You Missed It: First-Ever ME/CFS Collaborative Conference Held in Canada Carol Head, CEO and President of Solve ME/CFS Initiative, provides remarks alongside other advocates during a panel discussion on how to move forward with an international ME/CFS research agenda. The First...
  14. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    WEBINAR RESCHEDULED! New date is Thursday July 19, 10am PST / 1pm EST
  15. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    In Case you Missed it: Full Discovery Forum Presentation from Dr. Rick Williams is now available View the full presentation from Discovery Forum 2017 with Dr. Rick Williams, Principal Investigator for Medical & Public Health Research at RTI International prepared with his colleague Dr. Becky...
  16. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    Reminder: ME/CFS Research webinar Thursday, June 28 The Solve ME/CFS Initiative (SMCI) is pleased to announce the return of our popular webinar series for 2018 with “Crossroad of the immune response and the microbiome: Impact on ME/CFS” presented by Derya Unutmaz, MD, Professor and Principal...
  17. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    SMCI Ramsay Awards 2017: Meet Research Team 5 The Ramsay Award program is a foundation of the Solve ME/CFS Initiative’s (SMCI) commitment to explore all worthy research avenues. This program aims to move the field forward by funding innovative research across many disciplines, bring new...
  18. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    Preliminary Results from Ramsay 2016 Projects - Teams 2 & 4 In 2016, Solve ME/CFS Initiative launched the first cycle of the Ramsay Award Program. The Ramsay Awards are foundational to SMCI’s commitment to explore worthy research avenues. This program aims to move the field forward by funding...
  19. Emily Taylor

    SMCI Monthly Update Thread - June 2018

    Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan...
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