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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Could you blame the people testing this in stead of calling the patients "gulluble". I did 10 years of alternative things because there was nothing else in the early 90"s. We all just want to get better.
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Please don't use the broken mitochondria again. It hurts and is very denegrating. Every ME/CFS patient has to find out for themselves what's wrong and how to fix it.. GP's don't know anything, specialists even make us into non-patients. I don't have any medical training, so I might get things...
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    How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

    Not just rehabilitationist researchers, H. Knoop himself was among them.
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    Autoantibody targeting therapies in post COVID syndrome and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Wohlrab et al

    Are (auto)antibodies always bad things?
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    Physical function and psychosocial outcomes after a 6-month self-paced aquatic exercise program for individuals with [ME/CFS], 2025, Broadbent+

    A few small steps for patients made into giant leap (of disinformation) by GET.
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    #MEAction Millions Missing 2025, USA campaign - SOS (Save our Support Systems, Save our Science, Save Our Society)

    Good luck and stamina. But also: Take care of @ahimsa too!!
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    Use of antidepressants for/with ME/CFS?

    Acquired ischemic mitochondrial myopathy was a term used by Schiebenbogen\Wirth 2024, could there be a connection with ME/CFS?
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    Protocol Reconceptualizing rehabilitation research via an enactive framework and a radically interdisciplinary cross-analysis... 2025 Levi et al

    :) for you,:banghead: for them.
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    Protocol Reconceptualizing rehabilitation research via an enactive framework and a radically interdisciplinary cross-analysis... 2025 Levi et al

    BPS feel squeezed out, now they want back in.
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    Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al

    You might have given the best description of BPS here.
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    Preprint Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms, 2025, Tamariz, Klimas+

    Sorry Utsikt! That's prejudice too. All obese people and LC (ME/CFS) patients don't do taxing activities? Less used to pushing through? So why does PEM exist for these patients too?
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    Preprint Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms, 2025, Tamariz, Klimas+

    Normally I like what you write a lot. Not this post. Why do you doubt that obese and LC (ME/CFS?) patient are trying hard enough. Not getting the heart rate up is not a character induced outcome. Can researchers be fooled too? My heart rate didn't go up enough, but I'm sure as hell I tried hard...
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    The drugs do work: antidepressants are effective, study shows

    Could amitriptyline and other trycyclic drugs make a person susceptible to insuline resistance and therefore susceptible to ME/CFS? In my early 20's I was given those pills as a pacifier between two intake-sessions when I asked for assertiveness therapy. I had to wait 10 weeks or more. I gained...
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    The Netherlands ME/CFS Cohort and Biobank (NMCB) consortium

    Researchers apologizing would not mean much to me. They are at least trying to do better. All the specialists that wronged me apologizing? Ain't going to happen. Too many big ego's among them. All doctors learning to say: We don't know. We can't find anything yet. All the energy docs used in...
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    Different patterns of persistent somatic symptoms after COVID-19 reported by the Dutch media and the general population, 2024, Ballering et al.

    Prof. Rosmalen probably never heard that many people don't read newspapers anymore. Bad articles in newspapers? Or even worse research? They got funds for this garbage.:cry::cry::cry: O'Sullivan and Rosmalen explaining away LC, must be a trend in BPS.
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    Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?

    IL-6 for muscles?
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    Reversible reduction in brain myelin content upon marathon running, 2025, Ramos-Cabrer et al.

    I like your idea of making a list, but I can't help with that, sorry. I think I "eat" my muscles. I was painfully reminded of that yesterday and today after having walked for longer than I should have the day before. I'm in "repair" mode now. I ate chicken for dinner, added salt, onion, leek...
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    Neurodevelopmental and personality traits of somatic symptom disorder: A cross-sectional study 2025 Shimizu et al

    I might have to score this with 4 points. The rest of the questions are even intelletually offensive to me.
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    Segregation and Integration of Resting-state Brain Networks in a Longitudinal Long COVID Cohort, 2025, Zhang et al

    Abnormal social behavior genes cause fatigue? Makes me shiver.
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    Muscle oxygenation [as assessed by NIRS - Near Infra-Red Spectroscopy]

    It's been a while. Are there updates on this?
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