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Still too many of those horses answering: "Not my cup of tea". Confirming prejudice happens fast, changing minds takes much longer.

So do I. A few years back I did a memory test 2 -back, 3-back. Not once on location, but 3 weeks long at home. On bad moments reaction time went up 50%, misstakes doubled. That's how ME/CFS patients should be tested. Only once is a lottery.

I wonder if the witers of this piece, names not important and staff and readers of BMJ know how to use YouTube. They might want to see "Doctors with ME", by Anil van der Zee. An ass. psychiatrist and a psychiatrist pointing out that CBT is not to be used for psysical illness. And at the end of...

@dave30th called Paul Garner the O'Sullivan "poster-patient". I call him the "imposter-patient".

NASA research seems to conclude that astronauts have recurrring virus activation after 10-14 days after they arrive at ISS? Not even a microbe needed? They travel airtight and arrive airtight. No new microbe that can cause their own latent virus to come up again? A very delayed PEM? Exercise...

Don't Australian doctors have to take an oath not to harm patients? When GET can cause tremendous harm, why is there still a discussion about it?

CBT stems from false beliefs FULL STOP

The new documentary "Doctors with ME" by Anil van der Zee, might be helpful too. Marc Vink, GP, who also published about GET, becoming very severe because of GET. You can find it at the end of the documentary. And a psychiatrist an ass. psychiatrist explaining why CBT is not supposed to be...

Maybe they caught cognitive PEM on fMRI camera without knowing?

Unreasonably high? I would go even further than that. I live in the Lifelines area. GP's and specialists don't "do" ME/CFS, not even the specialist chronic fatigue. The physical exam I got there was specialist and assistant taking one side each. Heart lungs and lymph. Rush job. It took me longer...

@Grigor after having watched the whole documentary; it's way better than Hollywood productions. It's real. I'm grateful for all of you. Your documentary should become obligatory to watch for everyone working in healthcare. I meet doctors that did not have ME. They still psychologize ME/CFS...

$ 100 per minute billed for giving a personal opinion?

Thanks ever so much for this excellent documentary, @Grigor, and thanks to all that worked with you. And how sad that even medically trained people don't recognise an ME/CFS patient when one is looking straight back at them in their own mirror. Go conquer the world! Educate all ...

The problem starts with the medics just ruling out a few bad thing, but not testing anything related to ME/CFS, concluding nothing wrong, concluding it must be psychological. Psychologists concluding now the patients are ours. That's 3 times concluding without evidence and messing up our lives...

The problem I'm left with is an unclear diagnose. Clinical picture of, but no confirmation by EMG. I was offered Gabapentin and when I turned that down, the neurologist looked at me as if had refused the lottery price. ME was in the referral letter(against my explicit wish) I mentioned brainfog...

Thank you for your dedicated, hard work and participation in the discussion on s4me!! A fool can ask more than 10 wise people can answer. I don't mind being that fool. Due to 34 years of ME/CFS out of 68, I have no reputation to protect. I was never tested on itaconate, but I had a 24-hour...

Thank you for your answer. When I'm really heated up before an EMG, does that mean in my simple words, that the nerves are wide open, to let the current run through easier? That must be vasodilation, right? I suspect vasoconstriction, OI, probably low bood volume, are causing SFN, made worse by...

I think a survey might be a good idea. Because SFN is not at all understood, bad things can happen. Last week I had an EMG for possible polyneuropathy, although I asked my GP and the neurologist to test for SFN. I didn't have enough knowlegde to object to an EMG. I was glad to get a test...

Maybe this ship didn't even leave port. The captain and his senior crew were just making waves themselves, by feasting, lots of booze, that made them feel seasick. The fist that went overboard were the clients, they were not needed anymore. Just bossing them around had made the hotshots feel...

And the winner is??? So awful, having to wait for the answers