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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Rather not well enough to work (yet), but IV saline at least seems to work, must be worth trying then. Isn't that what @MelbME is plans to try?
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    Exhaustion in ME/CFS, what is it and what causes it - discussion thread

    How do you know there is no shortage of oxygen? Is there no connection in severe OI and oxygen? And what about glucose when the Krebs-cycle can fall flat? When everything becomes over-exertion? And ATP? Where is your proof. The other part sounds like Walitt. An involuntary block that prevents...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    And special thanks to @MrMagoo too.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    @Jonathan Edwards : "I think maybe the needs of people with ME/CFS need to be explained much more in terms of the actual experience of the patient. The problem IS the symptoms, which include both feeling terrible and blocks to function at a reflex level. And the management has to pivot on...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    No holding back here by Putrino. Thanks to @dave30th too. No holding back either. And even without F's. I knew you could do without those, even more powerful! Miller, Stone and other BPS people can't show their faces and articles after your blog. They will try for a while, but you are really...
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    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Please do! Why do doctors become medically paralyzed when ME/CFS is involved. More attention seems to have been payed to looking for symptoms of "functional" in Meave's case than measurements of malnutrition and dehydration. GET/CBT has made pwME into non-patients, not to be treated as...
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    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Impact on Quality of Life (QoL) of Persons with ME/CFS, 2024, Muirhead

    I apologise for being technically clumsy. 14 years to diagnose ME/CFS is where medical neglect starts. Doctors are supposed to be smart people, but I've become less and less convinced about that. Medical training means pumping lots of knowledge into the doctors heads, but they are supposed to...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Great job!! As if you were the court's stenographer @Nightsong.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Please do, but only if you are up to it.
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    Effects of spaceflight on the brain, 2024, Seidler et al.

    I can't access the paper. A bleak picture for Mars missions. Maybe ME/CFS/LC researchers and space researchers could compare notes and hopefully meet in the middle. Getting fluids not too much up in space and not too much down in mere earthlings with ME/CFS/LC would be great for all of us. Why...
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    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    No knowledge at the doctors end and we are not even malingerers but "attention seekers ". Best treatment is to ignore them. The same for their carers; they fell for it, so ignore them too.
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    Can internal medicine specialists diagnose functional somatic disorders (FSDs)? Training and comparison with FSD specialists 2024 Madsen, Fink et al

    I even filed a complaint in the hope to get some testing done, to no avail. (my first official complaint) Just after the complaint procedure I found out the same hospital had received 4,4 million to do bio-medical research on the severe multi-system disease ME/CFS, and Prof. Rosmalen heading...
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    The 1980s Alzheimer's scandal explained - so do we need to worry now?

    Maybe in ME/CFS/LC we have to be careful too. Almost in every "find" there is also a possible (future) treatment somewhere in there. Even without knowing if it is consequence of the disease or a possible cause. No one knows the cause yet, so what are they trying to find treatment for? Wallitt's...
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    Can internal medicine specialists diagnose functional somatic disorders (FSDs)? Training and comparison with FSD specialists 2024 Madsen, Fink et al

    An internist getting 3 to 4 hours to diagnose a FSD? After ME/CFS was mentioned I stopped reading. This junk gives me the shivers. Everything that the internist can't find must be FSD. And the call themselves scientists? Start learing about ME/CFS so you can diagnose it properly. Just a few...
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    Trial Report Cerebral blood flow and end-tidal CO2 predict lightheadedness during head-up tilt in patients with orthostatic intolerance, 2024, Novak

    I can't access the paper. And even if I could I probably would not be able to figure this out. I had an end-tidal of 34 (was 39) that is 12,82% but was CBF velocity measured? CBF dropped 25%. I had no lightheadiness. Severe cognitive problems were the reason I was tested, no "normal" OI...
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    Open UK participants wanted for research on motivations for complementary and alternative treatments in those with chronic illness

    A psychology Masters a Oxford and what are you researching without complementary treatments and chronic illness? Just motivation? Can you explain what you are really researching? I don't trust psychologists when they research ME/CFS.
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    Dr Avindra Nath, NIH USA, views on ME/CFS and Long Covid

    Nath went to Mars, without the precautions, and now he has the astronaut's version of ME/CFS/LC. That is in his dreams he went and now he has to turn to Brian Walitt for help, who has music therapy and acupuncture on offer.
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