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Not having experienced microgravity, many of the problems mentioned here seem to be present in ME/CFS too. Is there a scientist looking at the connection?

In ME/CFS nothing seems proof way beyond your reasonable doubt. And now you diagnose by abstract? I know I'm projecting my bad experiences with specialists on you. I apologize for doing that. You are one of the good guys now. But sometimes you can still sound so much like "them". Can someone...

Quality of included studies were rated low to moderate. Why use those then?

Research I've been waiting for. I do hope that oxygen supply and extraction are part of it but that is not mentioned, as far as I could see.

Taking a shower at a lower temperature helps, a bit, for me. The blood has to cool down the hotter skin and is taken away from from other duties? Oxygen seems to get lost between arteries and tissues, what blocks it ? (vasoconstriction in me, I think) When muscles have to work harder they don't...

This send a shiver down my spine. I don't need BPS anymore for a shot of adrenaline, just watching the news will give me an overdose.

It's not just shifting from horizontal to vertical. The tilt table test takes away your coping mechanisms. You're not allowed to wriggle your toes, as a soldier does on guard, that's a coping mechanism against OI. The point of the test is that you are being moved in an upright position. Or 70 to...

Great summaries. Really helpful. Maybe you could repeat the notes from the first post, now and then. I would like to see more, in the speed of your own choosing. But please take care of @forestglip first!!! :hug:

Drawing a picture because a GP does not understand words? Maybe educating the GP would help.

In the last century I tried my own pacing up/GET, more pwME friendly. My first attempt on a normal bike got me stranded after 400 m on a very small (1 meter) bridge, I had to be pushed home. So later I tried a hometrainer (no need to push home) starting at 50 meters en every 5 days adding 50 m...

In my opinion you are completely right about this. Psychiatry and psychology don't study chronic fatigue syndrome, they just study fatigue. They throw some diseases, without a marker test, together. Those diseases belong to their field of "expertise", because the GP could not find anything...

This could explain why I went from last year uni student to having what I would even call a learning disability.

Am I reading this right? Fatigue 7%, distress 11%. And the other "symptom" being female accounts for the rest of 42 %? Can someone help this poor foreigner make sense of this?

I already use metformin for diabetes II and it does nothing special for me in PEM. My PEM is sore muscles, more fatigue and more brainfog, no flu like symptoms. Metformin did shorten the muscle pain after excertion (groceries) from 4 days to 2 days. But that does not seem to work for everyone.

Thanks Trish! I think my problem is low blood volume and that's why I keep rehydrating. I thought I drank 2 liters a day, but after remeasuring it's over 3 liters a day. I don't use the mixtures anymore, too much hassle. Just a little salt several times a day. That's also counting what is in...

Maybe better not to give a grant to "researchers" that can't even get the name of a disease right. Not CFS/ME, folks, it's called ME/CFS.

It's the patients asking for a referral. GP's don't know anything about ME/CFS. Even a chronic fatigue "specialist" I met didn't know these cardiologists. I think both groups you describe would ask for a referral.

Thanks for your deep diving into all of those data @forestglip. Could hypoxia be a common factor in all those hypoxanthine findings?

Looks better than the Lifelines they wanted to use before (Rosmalen). What a pity that I'm too old to participate. 18 - 65 years.