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  1. Woolie

    Medicine Journal : Chronic fatigue syndrome - Stephen Perry 2020

    Ha, making stuff up has a long and illustrious history in medicine. * The 1970s, McEvedy and Beard made up mass hysteria to explain the Royal free hospital outbreak (largely based on the fact that most victims were women) * The 40s, Moniz got a Nobel prize for coming up with the lobotomy and...
  2. Woolie

    Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for CFS, 2020,Tack

    Fantastic work, Michiel, Dave and Caroline! A suggestion: if you were to create an account on ResearchGate (free to anyone), you could post the manuscript version of the fulltext of this paper there, and still be within the copyright rules of Taylor and Francis (that's the version before it got...
  3. Woolie

    Testing the ‘seizure scaffold’: What can experimental simulation tell us about functional seizures?, 2020, Tiefenbach, Stone et al

    The doi seems to be wrong, and I can't find the article in any of the usual places. It seems to be a conference abstract of some type, a brief report. Awful, awful stuff, from what I've read so far. The definite implication is that "functional" seizures are generated from the same source, or at...
  4. Woolie

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Agree. "Peronsalised" is one of those words that makes everything sound okay, but means absolutely nothing unless you explain exactly how you will decide what personal factors are relevant and how your approach will vary depending on them. If the main factor is the individual's "preference"...
  5. Woolie

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    When these practitioners talk about "central sensitization" they're not at all talking what you're talking about! Its a new(ish) euphemism for "psychosomatic", and refers to the idea that there is nothing in your periphery that can explain of your pain/fatigue/malaise; they are somehow...
  6. Woolie

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Lovely.:trophy@:trophy@ A comment worth remembering!
  7. Woolie

    Coronavirus - worldwide spread and control

    Totally, I didn't mean to complain. NZ has escaped very lightly compared to the rest of the world. And all because of the early restrictions. Life here is currently pretty normal, with people going to bars and concerts and parties and generally enjoying themselves without any fear. Everyone...
  8. Woolie

    Recognising and explaining functional neurological disorder, 2020, Stone et al

    No, apparently not. And even if the results were negative, this group's appraoch means that they would not see a need to revise the model. There have been a number of recent attempts to link FND with psychological characteristics or adverse life exepriences, and all have failed - - and this...
  9. Woolie

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Maybe you're right, @Trish, perhaps "misrepresentation" is just a euphemism for "lie". But to me it feels like "lie" is more loaded with baggage about presumed intention, whereas misrepresentation is the behaviour itself and leaves open whether it was intentionally misleading or just negligent.
  10. Woolie

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I'm sympathetic to @Esther12's position here. I worry that a word like "lie" carries implications around intent, and that we should avoid speculating on researchers' intent, and focus on the outcome. Think it is better to avoid that particularly word, with all it baggage, and say something...
  11. Woolie

    Coronavirus - worldwide spread and control

    In NZ, we're affected economically. Not as much as the UK US or western Europe, but remember we're not wealthy to start with. So all this has had an adverse impact on a lot of people. One of the biggest contributors to our economic downturn has been border closure, and its impact on tourism and...
  12. Woolie

    Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID, 2020, Kingstone/Chew-Graham/et al

    I just saw the documentary The Family, about an adoption and child mistreatment scandal in Australia during the 60s and 70s. At the end of the film the Australian Prime Minister was seen issuing a formal apology to all those whose lives had been destroyed by the adoption policies and practices...
  13. Woolie

    Recognising and explaining functional neurological disorder, 2020, Stone et al

    Thanks for posting, @Sly Saint. I read through the letter, and felt pretty angry at Stone et al. for giving patients the false impression that they believe FND is a neurological disorder ("corruption of the brain-generated predictions and interference from the limbic system and amygdala"). If...
  14. Woolie

    Coronavirus - worldwide spread and control

    I am NOT okay with this. Nobody is expendable. It wouldn't be okay even if it were true. But it isn't. The truth is that many previously fit, healthy and productive people have died or become chronically ill from covid. Everyone here has had their lives ruined by ME, and we (rightly) expect...
  15. Woolie

    Coronavirus - worldwide spread and control

    So sorry to hear the news from France, @Cheshire. It somehow makes me so sad to think of empty streets in Paris.
  16. Woolie

    Coronavirus - worldwide spread and control

    @Daisybell, I'm sorry to hear your mum is in the UK. Maybe someone form there can comment? Here in NZ: I do some work with the neurosurgery department here Wellington, and they had a huge backlog of cases because of lockdown in April that they've only recently got through. Having said that, I...
  17. Woolie

    Coronavirus - worldwide spread and control

    That's a tricky one, @Daisybell. I get that the restrictions themselves might be preventing some people from accessing the health care they need. Particularly in places with strict lockdowns. I worry about those with severe mental illness too. But then in countries where the incidence of acute...
  18. Woolie

    Coronavirus - worldwide spread and control

    I'm with @mango here. Its terribly important not to gloss over or minimise the seriousness of the COVID problem in any way. Its minimising the problem that has led to this worldwide failure to take action over the past 9 months, and to all the death and devastation we have experienced. Its also...
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