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  1. Alvin

    Researchers Report New Data On How Gut Bacteria and Lipid Metabolism May Influence Alzheimer’s, Other Brain Diseases

    I agree but tinkering on the edges is small potatoes. As a slight aside i have been taking a new supplement that has made some small improvements, i was of course happy but compared to my condition a year ago its a very small victory and i continue to progress so the improvement will be wiped...
  2. Alvin

    USA - Mayo clinic

    I assume they have a procedure in place already which they are quite attached to. It would be interesting to get a copy of it A better procedure would be what tests should be run to rule out other diseases and best practices currently in ME/CFS treatment. This would ensure profit to them and get...
  3. Alvin

    USA - Mayo clinic

    Thank you :)
  4. Alvin

    USA - Mayo clinic

    Okay so lets figure out the angle and work on it
  5. Alvin

    USA - Mayo clinic

    This is probably the best way to deal with acceptance of lies, negative press. Lots and lots and lots of negative press.
  6. Alvin

    USA - Mayo clinic

    But we can make the same argument in regards to heart disease or ulcers, continuing to claim its caused by stress brings them money in since it would keep failing. In general money is the deciding factor in many things but i don't think this is one of those times, this is probably a rare...
  7. Alvin

    Unrest on YouTube

    I seem to recall @JenB saying there was some exclusivity detail as part of being on Netflix so i would not be surprised if its not legitimate :( That said i really don't know
  8. Alvin

    USA - Mayo clinic

    I don't think this is directly about profit, i suspect they are wedded to the view they already have and admitting its wrong plus moving into something different and less "certain" is "risky then whats comfortable and "appears" to work. Of course there is some cost involved in rewriting their...
  9. Alvin

    USA - Mayo clinic

    So they believe in CBT/GET and facts don't matter because they have some unreliable anecdotal evidence that takes precedence over reality. The patients of their's that claim improvement are just appeasing them or using energy to get through the program and paying for it later (or in disease...
  10. Alvin

    Researchers Report New Data On How Gut Bacteria and Lipid Metabolism May Influence Alzheimer’s, Other Brain Diseases

    I only skimmed the article but it seems every time something comes in vogue its linked to everything big and the correlation hunting begins... I remember thinking about this a bit many years ago but filed it away and i think Dr Edwards said something to this effect in the enterovirus thread...
  11. Alvin

    What I Was Really Telling My GP When I Swore at Her in the Exam Room - Suzette Bishop

    Well done article. Also open ended, not a common way to end articles these days, i like it.
  12. Alvin

    'Denialism: what drives people to reject the truth' by Keith Kahn-Harris

    This article is currently trending on Firefox's new tab recommendations "Recommended by Pocket".
  13. Alvin

    Suicidal ideation in non-depressed individuals: The effects of a chronic, misunderstood illness, Devendorf et al, 2018

    I wish i could say its surprising or irrational, patients were suffering greatly and see no other option to end their pain except suicide. This is more rational then many politicians could ever hope to approximate, yet they are paid big bucks when they screw their constituents while patients of...
  14. Alvin

    'Denialism: what drives people to reject the truth' by Keith Kahn-Harris

    I agree, asking them to explain their actions is giving them a chance to not only legitimize but convince people that their actions are acceptable. Open mindedness is an excuse, the search for the truth starts with rejecting evil, a road too far for many, they actually want evil. If i say more...
  15. Alvin

    book:Understanding Severe ME - Essential Guide for Family & Friends

    You can share how incorrect it is and not worth the money based on Trish's summary. Any publicity is not always good publicity and i think its important not just to ignore bad sources but to point out their flaws so others who don't know better don't get sucked in.
  16. Alvin

    1st ME/CFS Canadian Collaborative Conference

    Ah, are we able to get a copy of the criteria out of 5 and what his application got (and maybe the application itself)? I know this is asking a lot
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