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I get this now and then, seems to come and go, not as bad recently though the other cognitive issues have gotten much worse. That said it could be a comorbid condition.

OMF has done a fair bit of micro fundraising. There are other examples of the same, Amazon smile for example gives a percentage of sales to OMF if you register for it and make purchases. I had posted a thread suggesting someone with experience could approach the Giving Pledge and might get...

Do they track what differences have been found so far between ME patients and controls in their samples? Is genetic testing being done to determine deviations and if so have results been found yet? Are there any standardized tests being done on current and incoming samples and if so have any...

Almost every big player from OMF to Dr Klimas to several others i can think of would love to have research money. If we had $25 million a year i am sure we can find people with track records to put it to good use without any trouble. But how to get that money? If we had $100 million a year i'm...

Thats what i want to know. Badly.

When i was given an SSRI i got this permanently :( The answer for me is HCL tablets (health food store) with every meal and Domperidone (a prescription medication) taken 30 minutes before a meal. Some people find they can reduce the HCL over time though thats for peoeple with low stomach acid...

Obviously none of this applies to someone with ME https://getpocket.com/explore/item/this-is-your-brain-on-exercise?utm_source=pocket-newtab

If speaking truth to power is harassment then the only authority possible is authoritarian. This is what some want

Open Medicine Foundation (OMF) is pleased to sponsor the inaugural Harvard ME/CFS Collaboration 2019 Scientific and Public Symposium: Finding Clarity. The Harvard ME/CFS Collaboration 2019 Public Symposium will follow a one-day scientific meeting with more than 30 researchers. Ronald G...

I was going to make a Borg comment as well. If we were Borg we would not have ME, their technology can control every cell at the molecular level. At this point being a mindless drone bent on galactic domination would be an improvement.

These might be of use? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6331450/ https://www.frontiersin.org/articles/10.3389/fped.2019.00131/full

I am not able to read the article but if they test their findings in good faith then a video game used to test a facet of memory can be scientific. It all comes down to how they validate their findings and how reproducible they are.

https://www.cnn.com/2019/04/27/health/video-game-alzheimers-scn-trnd/index.html

The form is still available to submit ideas, though no idea if it will actually send if you hit submit.

Damn :emoji_rage: I wish i had this yesterday :emoji_face_palm:

Interesting, they went in a completely different direction then i did But their document only covers the first two categories.

I just went with this one so no need to look anymore

I basically need the best we got

I need another reference, how long does it take people to be diagnosed on average? I found this link but its over 10 years old https://www.prohealth.com/library/a-profile-of-me-cfs-patients-how-many-years-and-how-many-doctors-25211

Nonsense, to infinity and beyond! $102,760 and rising. We may not get you to full time but we will try.