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  1. Alvin

    Jen Brea: My ME is in remission

    More or less, i wonder if she had CCI and not ME at all and that the CCC and ICC are just not good enough to differentiate between the two. Or she has ME and its in remission somehow is also a possibility. I think this is a good idea that should be investigated thoroughly (if we can somehow...
  2. Alvin

    Chronic fatigue tests being sold online

    Forget philosophy, by current law is what they are selling legal? I'm sure there is case law defining what is legal and not legal to peddle in medical equipment and fraud.
  3. Alvin

    Chronic fatigue tests being sold online

    Is this legal? Is medical testing fraud a crime?
  4. Alvin

    Trial By Error: The Lightning Process Is “Effective”? Really?

    Maybe we should be giving them more rope to hang themselves with If they think LP is legitimate science they should be happy to advocate widespread acceptance that its not quackery I would like to see them have to answer to this.
  5. Alvin

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    I agree But what we do with todays reality determines the future. Someone once said whether you believe you can or you cannot your correct. This is not totally accurate, but if you give up then you guarantee failure, if you keep your eye on the prize and find a way to make it happen then you...
  6. Alvin

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    While i agree that we are nowhere near getting real money i don't think its a lost cause. If we stop trying we will certainly fail, if we keep pushing we will eventually succeed but that success will take time and have a huge cost. One could have made the exact same argument over getting the...
  7. Alvin

    NIH Request For Information: Soliciting Input on How Best to Advance ME/CFS research

    None on my end. I don't expect any, iirc it doesn't request contact information hence they can't reply.
  8. Alvin

    A Waste of 1,000 Research Papers

    No surprise Are we ready to accept the implications?
  9. Alvin

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Probably the latter The safe money is abandonment. They are welcome to prove me wrong.
  10. Alvin

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Well can they turn this around on NIH taking credit, since you are very proud of the nanoneedle we need "more" funding to further develop it. How about $10 million dollars? No? But you "got" us this far, the media will give you even more good press if you "further" support our research.
  11. Alvin

    Trial By Error: A Plea to Fiona Godlee on a Familiar Topic

    I am reminded of this quote that i have posted elsewhere on the forum https://www.vox.com/the-big-idea/2018/2/25/16997572/causes-depression-pills-prozac-social-environmental-connections-hari Finally psychiatry has a dark underbelly to its history that a few have written about but have never...
  12. Alvin

    Petition to help Australians with ME/CFS get access to disability services

    Deliver it after the election to the new person. This may also work better because they will want to differentiate themselves from their predecessors.
  13. Alvin

    Request for help with possible TV documentary on ME

    There was a thread about this, i remember posting in it but don't have the link handy. I would also support much more media being created but we don't have the energy, cognitive functioning or money to sustain such an endeavour. If we could find a way i'm all for it.
  14. Alvin

    Trial By Error: A Plea to Fiona Godlee on a Familiar Topic

    I have argued that we needed greater reach for David's articles to make a difference. I was wrong on that one but i do think the more exposure his words get the greater the impact would be. If we could convince a mainstream news outlet to post his articles that would hugely increase awareness...
  15. Alvin

    Trial By Error: A Plea to Fiona Godlee on a Familiar Topic

    This is the real goal, they believe in lies and hope to have them forced onto a captive population.
  16. Alvin

    Crowfunding for a study about etiopathogenesis and try to set potential biomarkers

    @Notjustfatigue I'm sorry but not incredibly surprised to hear about how difficult it would be to get medical research funding. I do hope your crowdfunding works out but as i was getting at we are a pretty tapped out bunch :( Finally the impression i get from this thread is that you hope this is...
  17. Alvin

    New Zealand Supported Living Benefit Application

    I have written about disability applications on these threads, hopefully some of it is helpful https://forums.phoenixrising.me/threads/help-for-disability-appeal-australia-ruled-not-fully-treated.52426/ https://forums.phoenixrising.me/threads/ss-disability-hearing-tomorrow-any-pointers-usa.52510/
  18. Alvin

    New Zealand Supported Living Benefit Application

    Thanks :) A double appointment is a good idea. If it asks for it then go for it but here anyways its more about you and your ability to not work and not about what the research is about the disease. Someone with dementia or cancer or Alzheimers would not need to classify their disease, they...
  19. Alvin

    New Zealand Supported Living Benefit Application

    Write see attachment and number your response. I don't see a number for the first box, so add See number 1 on attached page or similar if necessary. My description of my physical and cognitive functioning was 1.5 pages long typed iirc Remember to be 100% honest, with no ambiguities. They will...
  20. Alvin

    Request for help with possible TV documentary on ME

    @dave30th would also be on my recommendation list. I have no idea if @JenB would be interested but perhaps?
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