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  1. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    Unfortunately being taught something does not make it correct, how many diseases were thought to be something then proved to be something else, from MS to narcolepsy generations of doctors were taught one thing that was then upended. Lets not forget lobotomies were thought of as miracle...
  2. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    Experience and background in this area. There are some exceptions, people who have things like brain tumours, thyroid issues and sometimes side effects from drugs mean those things can be treated. Though sometimes brain tumours are inoperable unfortunately. If a person is spending years in...
  3. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    I can't imagine why the deep depression happened :( It kills brain cells and we have no idea if that damage can ever be undone, if it reduces future lifespan, if it increases risk of diseases like Alzheimers or Parkinsons or others... In some cases it does cause permanent behavioral...
  4. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    People who are traumatized have suffered great trauma. Its not a biochemical imbalance or neuroinflammation. So the answer is to kill their ability to feel emotions. For generations lobotomies were defended as heroic treatments, i wonder if they will make a return as well. Its even more...
  5. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    Brain damaging emotional pain away is not a good thing, and just because they didn't respond to ignore your problems till they go away (CBT) or blunt emotions SSRIs does not mean the only answer is to kill brain cells till they can't feel emotional trauma. Its funny that killing intelligence and...
  6. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    Kill brain cells until people stop complaining and are more compliant. It has a storied past in the US and is still rather commonly used...
  7. Alvin

    David Tuller: Trial By Error: My Letter to Red Whale/GP Update

    Still playing both sides... :emoji_face_palm:
  8. Alvin

    GETSET letters in The Lancet

    Are you sure? https://www.space.com/20948-moon-property-ownership.html
  9. Alvin

    Europe: EUROMENE

    I also think it should be embraced but perhaps they need to have membership requirements that exclude psychosomatic nonsense.
  10. Alvin

    David Tuller: Trial By Error: FITNET-NHS Recruitment Ad Promotes ''Recovery''

    Indeed, by any chance do they have a legal obligation to not invent lies?
  11. Alvin

    David Tuller: Trial By Error: FITNET-NHS Recruitment Ad Promotes ''Recovery''

    Same here but even if i am unable to read them i know he is doing good on our behalf :)
  12. Alvin

    Discussion - Does ME involve brain inflammation?

    In that case if we can't show this is the case we should abandon the theory that neuroinflammation is the cause of depression. I can't see this happening...
  13. Alvin

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    This wasn't a case of disagreement in good faith, this was bad faith by whoever at the hospital was trying to take rights away from the patient and their family without the family doing anything wrong. I agree but there is a big difference from quackery to medical disagreement. The Mayo case...
  14. Alvin

    Discussion - Does ME involve brain inflammation?

    This sentence leads to this question, one of the current theories is that depression is caused by neuroinflammation, what are your thoughts on this (afaik it does not show up on MRI)
  15. Alvin

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    Does it need to be a whole page?
  16. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    I look at it as a sum of all forces, if people are worse off over time then they have progressed. The mechanism is not well understood, is all progression from overdoing it into PEM, would it progress on its own if patients were diagnosed the day after they got ME/CFS and told to never go into...
  17. Alvin

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    Not a cheap price, but not completely insane. It does not have to be a booklet, an advertisement or editorial might be good enough? Would a paper include it if it was sent as a letter to the editor (do they still do that)?
  18. Alvin

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    How much would it cost to publish this in the the UK's most read newspaper?
  19. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    I see. If i had been asked 10 years ago i would have said i was rather static, the decline was very slow and hard to notice but for much later hindsight (unfortunately), but if you asked me today my last 7 years has been very downhill :( I can't read it, i lack the cognitive ability to get...
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