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  1. Alvin

    Sleep deprivation for PwME

    No problem
  2. Alvin

    Sleep deprivation for PwME

    Poor sleep quality is a hallmark of this wretched condition. The specific abnormalities often vary from person to person but i can relate to some of what your wife goes through and go through other different ones that also are likely ME related. Same here I know exactly what you mean on this...
  3. Alvin

    Dietary carbohydrate intake and mortality: a prospective cohort study (Lancet)

    I am unable to read the whole study but meat is not the only game in town, what if it were replaced by more vegetables instead. Also what meat or what vegetables, if the predominant meat was say pork but turkey is the ticket then this study would end up suggesting that carbohydrates are superior...
  4. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    Of course they do, it would be like asking PACE pushers if they agree about prescribing CBT/GET to ME/CFS patients. They will certainly agree. Indeed https://www.nature.com/articles/35002188
  5. Alvin

    #MEAction: Enrolling: Stanford School of Medicine Brain Tissue Bank

    I'm more curious if they will accept samples from the undead. At this rate by the time i can leave them brain tissue i won't have any left :dead:
  6. Alvin

    PEM discussion thread - post-exertional malaise

    I used to be delayed a few days, once i made it a whole week. These days its same day or next day, sometimes two days but very rarely.
  7. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    I do not say this whatsoever
  8. Alvin

    What research do you want to see? (study ideas)

    Yes I agree but this is an important question to answer, if we can stop deterioration by proving its caused by PEM episodes then that will improve many patient's lives until there is a treatment/cure. It may be more ethical to do in depth surveys on patients then follow up later, how often do...
  9. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    You will get no argument from me, but i have been warned Its interesting how once something is okay for the "worst" cases many conditions now qualify, the definition expands when useful
  10. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    That is a long discussion that is probably best not to have in this thread.
  11. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    This isn't the reference i was thinking of but came up in a quick google search https://www.huffingtonpost.com/dr-peter-breggin/electroshock-treatment_b_1273359.html I agree completely with this I agree that you can seizure peoeple into not thinking about their problems. Thats not a cure...
  12. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    I don't even know where to start on this one. Children younger then 4 being treated with ECT, sounds cavalier to me. Disproportionately women, whose hysteria and unwillingness to follow gender roles is used as evidence of mental illness is another. I could explain the more graphic examples and...
  13. Alvin

    Podcast: TWiV Special: David Tuller is PACEman

    It can be replicated, its just a very stupid thing to do. It would be like being in the middle of the ocean on a rubber boat and seeing what happens of you put a hole in the bottom. Logic says you will sink but lets pretend we can't foresee that and test it :emoji_face_palm: Oh and we will bill...
  14. Alvin

    What research do you want to see? (study ideas)

    A discussion elsewhere and my thread have led to this question i think should be researched. Would people diagnosed with ME/CFS stop progressing if they stayed out of PEM. Of course people are diagnosed at all stages since most visit many doctors over many years before being diagnosed but for...
  15. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    That may sound good on the surface but the history of terrible abuses of this technique should not be forgotten. Someone once said history does not repeat itself but it does rhyme. ECT has been used on children, in mental hospitals involuntarily and worse...
  16. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    I could go on a long discussion of bad faith, the history of ECT is very gruesome but i suspect that would go over badly. Of course it matters that they are similar, that is the point, arguing we should consider it when there are no other options echos something that is used against us, i find...
  17. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    But one could unfortunately make the same argument for CBT/GET for ME/CFS, nothing else is available so why not try it. The poor science involved doesn't matter because there is nothing else that could do what this might. I seem to recall an S4ME thread where it was argued that if CBT/GET were...
  18. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    I understand I'm sorry to hear about this, its never easy to tread into difficult places and i apologize to everyone i have rubbed the wrong way here
  19. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    ECT is effective in alleviating depression in a good majority of cases, because of how it alters brain function. It has been claimed to only kill bad brain cells and spares healthy ones (a reference from a book i read decades ago), to fix brain imbalances and so on. Typically many who have...
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