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  1. Alvin

    "Plunging Grant Application Rates Test NIH’s Commitment to Chronic Fatigue Syndrome (ME/CFS)"

    They have no real interest in funding ME/CFS research. I have talked to several researchers who basically said (reading between the lines) that they don't apply anymore because they have been denied repeatedly. Their criteria and public statements make no sense and are obviously designed to go...
  2. Alvin

    New proof that narcolepsy is an autoimmune disease

    The fact Narcolepsy is autoimmune is news to nobody in the sleep research field, this has been known for over a decade, but assuming this is correct may explain a bit more about how the autoimmunity is killing the Orexin producing neurons
  3. Alvin

    false assumptions about viral infections

    Merged thread I haven't read it yet but in case its interesting https://www.theatlantic.com/science/archive/2019/03/the-revolutionary-discovery-of-a-distributed-virus/584884/
  4. Alvin

    Intimidation of PACE critics or critics of other Psychosocial research

    More to add https://forums.phoenixrising.me/threads/illustrations-of-threats-issued-by-simon-wessely.11631/
  5. Alvin

    ME/CFS International Research Symposium, March 2019, Australia

    I understand, i am not ready to try highly dangerous things but if i was near death the calculus changes.
  6. Alvin

    ME/CFS International Research Symposium, March 2019, Australia

    Interesting. It could be. Has anyone else tried that drug for ME?
  7. Alvin

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    It goes against the established order. When fat was discovered not to be a villain in human health an entire industry turned against science because it had been built to profit off of the low fat mantra.
  8. Alvin

    Are Wessely, Sharpe & Co psychologically manipulating gullible journalists into writing articles that present them in a good light?

    I think your giving them too much credit. I think its more a case that they are the abusers their profession claims to abhor hence use tactics many a spouse uses to abuse their family.
  9. Alvin

    ME/CFS International Research Symposium, March 2019, Australia

    I don't disagree, i would guess that a immune mechanism is malfunctioning and we need to identify and manipulate it. Why its malfunctioning is also an important consideration, if we turn it off when it needed to be on then we may find there is an even bigger problem unleashed. But if its turned...
  10. Alvin

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    He is trying to gaslight his way out of the quagmire he helped create.
  11. Alvin

    Are Wessely, Sharpe & Co psychologically manipulating gullible journalists into writing articles that present them in a good light?

    Funny that i was also thinking about this earlier today, how can a small group of liars get away with murder? I think its an analogue of whats happening in the world today, they are bullying and easy answering their way to power and influence. And coincidentally their easy answers and lies...
  12. Alvin

    David Tuller: Trial By Error: My Letter to Kate Kelland

    @ScottTriGuy commented That is an excellent idea :rofl:
  13. Alvin

    The Weird Power of the Placebo Effect, Explained

    https://getpocket.com/explore/item/the-weird-power-of-the-placebo-effect-explained
  14. Alvin

    ME/CFS International Research Symposium, March 2019, Australia

    Egads :( So sorry to hear about this :cry:
  15. Alvin

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    No need to feel stupid, as long as we work together we will ultimately triumph :) Thank you One thing i have always felt is that we need to understand our adversaries in order to effectively oppose them so this is not far outside my research area if you will. As Sun Tzu once said...
  16. Alvin

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    Don't count on them retiring, their "movement" needs them to prevent its collapse. They have some younger colleagues but they will stay active in ME denial.
  17. Alvin

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    I completely get it, they are under attack by reality. They have transmuted that attack into calling us militant violent patients because whenever we disagree with them or reality does its a fundamental attack on their belief system. We are essentially telling them their god is a lie and their...
  18. Alvin

    ME/CFS International Research Symposium, March 2019, Australia

    So from the sounds of it T3 is not an issue but its having a stimulant effect but that effect is causing the disease to respond badly. Thats useful information saying don't use it. Very unfortunate that many had to suffer to bring us this knowledge :( I agree, we need a disease mechanism or at...
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