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  1. Alvin

    Response to Michael Sharpe’s claims of harassment

    This is a big thing and something i also think about sometimes, when you want to reach people you have to make sure your putting things into their point of view since they won't have the knowledge you do. So very well done :) And something we should always keep in mind.
  2. Alvin

    ME from stress ?

    I would think the idea is if your stressed but in early ME your burning extra energy and causing more PEM meaning more rapid acceleration of the ME. Plus if your not diagnosed you would not know that you need to stay in your energy envelope because you don't know what an energy envelope is yet...
  3. Alvin

    Trial By Error: Kaiser Permanente Changes Course

    This is a big deal. If your articles were posted on many websites it would greatly expand your reach. How could this be done?
  4. Alvin

    Lets get David Tuller funded full time thread

    Quoted from the announcement thread Does anyone have a contact at IAFME?
  5. Alvin

    Response to Michael Sharpe’s claims of harassment

    I would make it a strategy, say a fundraising spot with a few commercials, one of them being this one abbreviated but explaining the background as well. For the others ideas such as research needs money so please donate (to a provided 800 number or link), maybe 1 or 2 with specific research...
  6. Alvin

    Solve ME/CFS Initiative: Register now for the EmPOWER M.E. Roundtable Livestream!

    Is there a way to check if i have already registered, i can't remember if i did already or not?
  7. Alvin

    Response to Michael Sharpe’s claims of harassment

    You need to do both, a good campaign reaches many eyeballs repeatedly. You don't want gaps in your reach. Cool Are there other members interested in working together to develop media?
  8. Alvin

    Response to Michael Sharpe’s claims of harassment

    I agree but i also disagree. While TV no longer has near monopolistic market penetration its still a highly influential and viewed medium. I would use it if feasible. But i would of course also use internet assets, YouTube anything developed for TV and make smaller clips not just from the TV...
  9. Alvin

    Response to Michael Sharpe’s claims of harassment

    Some of those rates are not terrible. That said this video is about 5 minutes long and might not be the best TV material but i wonder what it costs to be a promoted Youtube video. And we could invent fundraise for ME TV commercials and at some of those rates it would probably work out
  10. Alvin

    Response to Michael Sharpe’s claims of harassment

    Thank you :) I'd also settle for trending on YouTube or featured on Vox/ThinkProgress/Slate/CNN etc.
  11. Alvin

    Response to Michael Sharpe’s claims of harassment

    Nice. How much would it cost to put this on TV as a commercial?
  12. Alvin

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I know who they are, i just meant why would they be the influential point person?
  13. Alvin

    Lets get David Tuller funded full time thread

    @dave30th @JenB @JaimeS @Emily Taylor @Action for M.E. @Action CIND @ScottTriGuy @Adrian @Jonathan Edwards @JohnTheJack @Tom Kindlon @Dx Revision Watch @Gary Burgess @Nathalie Wright @The UK ME/CFS Biobank @Valerie Eliot Smith Do you have the ability to publicly mention the crowdfunding...
  14. Alvin

    Lets get David Tuller funded full time thread

    Building on what i posted on the crowding funding announcement thread i think we should set up a call out for wider exposure and more donations So anyone with ideas, can you offer some brain power (even a little is very helpful, please post in this thread or PM me), can you help put together a...
  15. Alvin

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Do we have a list of ME organizations that are members of S4ME? Can we put together a list so we can @ their reps?
  16. Alvin

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    This suggests you have a donating base which is good. What we need to do is expand your number of donors, if you can double or triple or more even small donations will supercharge your total funding. Agreed, it could be increased to the full time or add a tier, the current 95K is 60% and say...
  17. Alvin

    Private Eye - Paul Foot Awards: Nominations - want David Tuller?

    I agree that its for him to judge. What i am saying is that we should not be afraid to try for long shots because sometimes you win. How do we know what other entries have been made? I have seen situations where only 1 or 2 entries were made to obscure scholarships for example making the odds...
  18. Alvin

    Private Eye - Paul Foot Awards: Nominations - want David Tuller?

    In this case there would be no loss if he does not win this year but if he is not entered then he most certainly will not win.
  19. Alvin

    Private Eye - Paul Foot Awards: Nominations - want David Tuller?

    While i do agree with you i am reminded of an old expression, if you don't ask you don't get.
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