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  1. Alvin

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Is the 5K matching met? Worth donating now or is there another matching coming in the last days?
  2. Alvin

    Dr. Ron Davis of Stanford - Research Update - Drug Screening. Video from Emerge Symposium March 2019, Australia

    The why really matters. They need to identify the molecule which might help answer this question or may lead in a direction of preventing its release in the first place.
  3. Alvin

    MEPedia is offline

    Thats good news but perhaps this message could replace the homepage which is currently a cannot be reached message.
  4. Alvin

    #MEAction: "Unseen: Black people living with ME"

    The reality denying right will call the disabled lazy welfare queens. Its been happening since the 70s already so not much else is there to change. Ignoring minorities will not help us or anyone else.
  5. Alvin

    MEPedia is offline

    Down again :(
  6. Alvin

    PLOS ONE pulls highly cited mindfulness paper over undeclared ties, other concerns

    I agree he has had success, and as mentioned And how have they achieved success pedaling their lies? Not by following your approach. They have lied, cheated, lashed out at us, committed fraud, called us everything in the book, had people taken away and essentially tortured and so on. They...
  7. Alvin

    PLOS ONE pulls highly cited mindfulness paper over undeclared ties, other concerns

    When your fighting a powerful and intractable enemy everything you do must be tactically chosen. When people protest injsutice being meek gets them nowhere. We should not become the evil we oppose but being meek will mean we fail. I get it, it feels intuitive to go with culturally sanctioned...
  8. Alvin

    PLOS ONE pulls highly cited mindfulness paper over undeclared ties, other concerns

    I disagree, the bullies/reality deniers use everything from abrasiveness to threats to lies. And when a victim speaks up they are the ones accused of being abrasive, bullies or liars. It is meant to keep the victims downtrodden, so while we should not become their evil and use threats or lies i...
  9. Alvin

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Reality denial meets death :( This is what easy answers and conspiracy theories and alternative facts gets us...
  10. Alvin

    OMF plan Times Square New York awareness campaign on ME awareness day

    Nice, this is what we need, to expand our reach.
  11. Alvin

    Blog: Occupy ME, "I Want To Believe Dr. Collins, But I Don’t"

    I didn't read the link but i did read the quote. I very much agree, i have said exactly this in a couple threads on S4ME, they are creating a fake chicken or the egg problem to get themselves off the hook. They admit the reality of ME but invent excuses as to why they "can't" do anything about...
  12. Alvin

    Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

    I am so reminded of this clip (that starts with ambulance/police noises)
  13. Alvin

    Join us in Toronto this Sunday: Federal Health Minister at Town Hall

    Please let us know how this went when you recover
  14. Alvin

    News article - The crippling brain condition doctors say is all in your mind

    Its not about i don't know Its about i think its this reality denying house of cards that i choose to believe over people or facts.
  15. Alvin

    Suddenly my head spins

    I get something similar but its more situational, if i need to balance or squat or bend over or use a chair not at my house and i'm not used to i get fraction of a second loss of balances, i've had a few falls from this and sometimes i catch myself in time. Sometimes it just happens for no...
  16. Alvin

    NORD Removed its ME page

    Is that good?
  17. Alvin

    Architect designs home for severe ME

    Very interesting. I was not expecting MCS, i was expecting design for someone bedbound and unable to care for a house or easily take care of daily living without full support.
  18. Alvin

    Melbourne (Australia) CFS Discovery Clinic Closing

    Damn Could he be coaxed into training a replacement?
  19. Alvin

    Join us in Toronto this Sunday: Federal Health Minister at Town Hall

    Current funding is zero dollars. I would say commensurate funding compared to conditions like HIV or MS is XXX dollars. The question is what would have to be done by them to get ME to this level in the next 5 years and what are they willing to personally do to make sure it happens. And with...
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