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  1. Midnattsol

    Long Covid in the media and social media 2022

    The Norwegian National Institute of Public Health has also done a review of long covid, and for those of you who know the NIPH view of ME it comes as no surprise that long covid is being downplayed. Nå vet forskerne mer om long covid Now the researchers know more about long covid In the...
  2. Midnattsol

    A random thought on contributing causes to ME/CFS

    Water with aspartame? I'm not a fan of artificial sweeteners, I feel the potential issues (microbiome alterations, change in taste/hunger stimuli etc) are difficult to measure and so won't be picked up in general testing.
  3. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Kunst has also made a good intervew at psykologisk.no after his and Fjelltun's opinion piece. It's behind paywall: Reagerer på innblanding i Lightning Process-studien: – Ironisk Responding to interference in the Lightning Process study: - Ironic Subtitle: - Time and time again, the patients are...
  4. Midnattsol

    Language as a predictor of anxiety, depression, and self-efficacy scores and recovery rate in teenagers with CFS, 2022, Fennema (M.Sc. Thesis)

    As someone who has written a degree on a subject not very related to what the supervisor(s) is actually working on, I don't think I got a single comment on how I approached what I did.
  5. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The National Ethics Committee has written a short comment on the case and the general workings of NEM. Svar til Twitter: Slik foregår saksbehandling i NEM Reply to Twitter: This is how case processing takes place in NEM
  6. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The locals news outlet for NTNU, that is the university responsible for the study, also writes about the case today. A better recap of the story than forskning.no in my opinion: FHI-SJEF PRØVDE Å PÅVIRKE NEMND-MEDLEM - Uheldig sammenblanding av roller FHI MANAGER TRIED TO INFLUENCE BOARD...
  7. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Forskning.no has written about this today. FHI-sjef prøvde å påvirke etisk godkjenning av ME-forskning FHI chief tried to influence ethical approval of ME research "Befring believes the problem with the inquiry is Flottorp's position of power in FHI and the use of characteristics of the...
  8. Midnattsol

    From academic success to cognitive disability

    My story is similar to yours. I started to get ill in my late teens. Gifted, top of my class, started to struggle cognitively (and physically). I couldn't do simple math like add 2 and 3 together (always loved math and numbers), I couldn't read novels (again something I loved), I couldn't follow...
  9. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    They were sent a few weeks ago, but are about what FHI/NIPH has had to deal with when it comes to "the ME debate", and as I read it presented as a win. That the review is still up has been used to argue that it is not bad (for then it would have been withdrawn :confused: ), I have not seen IAG...
  10. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    forgot to tag @Caroline Struthers (new post since tag won't work in an edit) Please share :) The deputy chair has also commented on how Flottorp has been in touch with our institute for alternative health (NAFKAM) and commanded them to pull their warning about Lightning Process so might be a...
  11. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    It's from an email sent to a member of the new National Ethics Committee before they got the LP study on their table. Originally from here: I've translated it here: https://www.s4me.info/threads/lightning-process-study-in-norway-given-ethics-approval-february-2022.14876/page-45#post-449446 a...
  12. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I think what Flottorp is referring to are the emails between the old editor at Cochrane where he wanted to withdraw the exercise review and the Norwegian National Institute of Public Health authors. Not the IAG.
  13. Midnattsol

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    One of the comedians have made an official complaint to the press's ethical committee about a journalist from TV2 that wrote about ME without disclosing he had been part of a fundraising for ME research. Didn't get through the article, but the comedian claims it has nothing to do with ME, but...
  14. Midnattsol

    Tissue specific signature of HHV-6 infection in ME/CFS, 2022, Prusty et al

    My class benefitted from having a professor that has been targeted by BPS proponents to lecture us. Talked about working with patients, and how difficult that was because being on the patient's side when it comes to ME meant one could be attacked as a professional from colleagues. Was very clear...
  15. Midnattsol

    Advice on mask-wearing to protect against Covid-19

    I wonder what will happen in Norway now, our deputy health minister has said people should consider masking, but just like other places "consider" and "recommend" doesn't cut it. I wear a mask and have placed an air purifier in my office. It bugs me that I work in a building where two floors...
  16. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Professor in psychology at UiO (same university as Wyller for those not familiar). Translation: "Has a controversial head of research at FHI, who have been very involved in the ME-debate, really tried to influence the independent ethical review of a disputed ME-study of her good colleagues...
  17. Midnattsol

    Information card, or similar?

    Same. If I can avoid saying ME it is that my muscles easily fatigue and/or gets weak.
  18. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I'm happy Befring answered this. And I wonder what did Jo and Camilla talk about the 15th november so that he sent this email the 16th.
  19. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Sorry for the double post. The claim that harm a long time after LP is unlikely, but effect shortly after LP indicate it is curative does not sit well with me when one has to say after the course one is healthy or it doesn't work. Well obviously a lot of other grievous things, but this one...
  20. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    "Not read in detail". Siri Forsmo from NEM that defended the study on Dax18 made it sound like she herself hadn't read it and I would be more surprised if she hadn't (as a member of NEM) than Flottorp. They refuse to talk about the issues anyway.
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