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Lack of nutrition care has been one of the things they have been criticized for. I'm not sure what type of feeding people have said have been denied, as when someone writes "I was not allowed to use my tube feeding" it's difficult to know if they are referring to a tube through the nose into the...

I'm not sure I understand. Are you referring to the ideal world where a unit like this would be paid for through regular healthcare? As it's private I can understand money is an issue for both the individual and any municipalities that might pay for other health care for their inhabitants (and...

What, test for something if people are not aware they are affected? Wouldn’t that give overdiagnosis, cause hysteria and what else? I wonder how nutrition status change in people with olfactory dysfunction. We have seen an increase in reported eating disorders in children after covid...

Some of us aren't all that bad and know the limitations of the field ;) Guidance in Norway is for someone with a disability that can impact their food intake to be screened for malnutrition, but that is to avoid deficiencient intake of food/nutrients being an additional health problem to...

Adding this to my grievance of having "diet and exercise advise" listed as a "low level risk" for consulting artificial intelligence in healthcare.

At least the Norwegian members of COFFI argue for fatigue being a spectrum, with CFS on the extreme end. So I'd say they don't see a difference between ME and other fatigue.

Yes. At least in my country healthcare workers are taught how to help patients set (realistic*) goals. As information about ME is severely lacking, this knowledge is most likely used on other patient groups. For my profession it is all about behavior, with the idea that healthy living will...

There was a previous study on that but garbage in, garbage out makes it difficult to say if there's increased risk or not.

It’s also fun how it is explained as something new and inventive to help GPs, when GPs could have looked to those of us who work with behavior and have found the tools were already available. Hubris.

Yes, thank you :) In Norwegian the translation for «unknown» would be ok to use.

Something the public health field also should discuss is how the increase of "vague" symptoms such as fatigue could be the sign of worse health outcomes in the years to come, as evidenced by the studies that show pwMS have higher levels of health care consultations years prior to more...

Reference 57 is from before our current guidelines, so it is a bit uncertain how the diagnostic codes are used today. Although I think it still highlights which codes a doctor unknown with ME/CFS would think fits the symptoms.

I don’t think it’s a translation thing as much as a field-specific term. If public health would own up to its failure to see these consequences of the pandemic, there wouldn’t necessarily be a need to call them «excess». Now the term serve to highlight that there are in fact an increase seen...

Too bad FHI’s own study that showed ~2% of covid infected are on sick leave >6 months was published too late to be included here. It would have fit with the topic.

It’s sadly very easy to lie with statistics.

I'm also one of those that can be very cold. My knees especially for some reason. My partner has commented that I'm sometimes freezing to touch despite having been asleep under a duvet for hours. Others have commented that my hands and/or feet have a bluish tinge (and then are cold to touch)...

Me too, except the extreme night sweats. We did however buy a wool mattress topper and it's been very good for temperature regulation when sleeping and even if I get night sweats it feels more dry than other types of mattresses we've had.

Stiftelsen Dam/Foundation Dam. They have even translated the part on "Open Science" to English in their guidelines (see point 4): https://www.dam.no/retningslinjer-for-apenhet/

Certain BPS individuals also claim health care professionals with close family have a conflict of interest (and possibly just "long term interest/care of patients", but my memory on that one is more vague). But do they follow up? One of the larger funding bodies in Norway has this policy, but...

This! And while yes, sure we did wonder if my ME would be an issue during pregnancy, there wasn't exactly any evidence to guide us to make a decision either way. Quite.