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mention the gmc complaint that dr myhill has put forward and all the people that have written about being harmed by GET You could also quite some of the reports of harm from the minutes

Do you remember if you had any negative views of GET before you started it? I bet back then you probably didn't so did it in good faith.

I was told by Dr William Weir that the 2 day CPET test proves that ME is an organic disease rather than psychological. He said the response in the lower anaerobic threshold on the second day is only due to the body reacting differently to exericise, as a normal person (even if unfit) would have...

I wonder if years ago patients did actually have any preconceived opinions about exercise. When I was diagnosed about 10 years ago I wasn't aware of any controversies etc so assumed what the drs were telling me regarding exercise was correct - thinking that i needed to get back to normal after...

that statement about deconditioning would be worth having as it is being used as an argument by many people.

My horse never wanted to drink. In the end I used a large syringe to get water into her :)

I dont mind collating things if you want to send them to me when you get them

Use tubigrip bandages on your arms down to knuckles and cut a hole for thumb. Use when doing more arm things and it helps lessen the pain later.

I think i downloaded them all a few weeks ago. Am away at the mo though so won't be able to check until next week.

Interesting that he has gone for Functional Neurological rather than the normal Functional Nervous. Sounds like trying to suggest it is more biological but then sliding back into the psychological.

he didnt refute the fact that his work is being misinterpreted with harmful effects - so that could be an admission that he knows that

They also have another article on their site called "Fibromyalgia, Chronic Fatigue Syndrome and others are essentially one and the same condition" which has the following section : "Psychological history Psychological issues are accepted as an important factor in these conditions and there is...

I wrote a letter and got a reply saying they are looking into it and will get back to me (they phrased it better than that) I imagine it will take them a while to go through everything they have been sent before they can respond.

thanks for the info - i wanted to try the fasting as I had been reading about how it can help regenerate mitichondria. I wouldn't be able to do the 48 hr ones though as I get too shaky if I don't eat for even a few hours. It's good to know that you have seen benefits from it, so I will...

how do you do your fasting? Is it the only eat within an 8 hour slot or do you do nothing for a couple of days?

I think all of the reports from the Chief Medical Officer's Working Group on CFS/ME are available online in various places. Do people already have these and have been through them or would they be useful to download (which I am happy to do)?

going back to the science aspect - if AfME agree that the results are questionable then shouldnt this be reflected in their public descriptions of these therapies? I would ask that if the information on AfME website is not being rewritten can you let us know why as there must have been some...

Would some of the UK orgs ie MEA be able to post on their FB pages?

"a) Professor Butler expressed concern that the APT manual appeared to be considerably smaller than those for CBT and GET. Recommendations including copying the format of the GET manual for information on engaging the patient, the initial assessment and troubleshooting such as `what to do if...

Action: PW to write to all members outlining potential conflicts of interest, and invite replies. Is it possible to ask for these letters under another FOI request?