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The grip strength test that I was given was done using "Jamar hydraulic dynamometer". It had five settings and the setting was changed after each test. It says in the report that ! was the closest so I guess something gets moved further away and the test becomes harder (or easier?). But then...

weirdly when I had my "medical examination" for my critical illness insurance claim the "Doctor" had me do a grip strength test. This was the only actual physical test that I did and the rest of the time was just spent asking me questions. He didn't say why he was carrying out this test. Then in...

As they used the one letter in multiple cases maybe we should send letters about each of the research cases it was used in. Ask the specific question as to why a letter from another case was used to exempt the research in each case. They should have to answer the questions and it would mean...

It's perfectly brilliant and sums up everything in an easy to digest way. I have tears in my eyes from the feelings of gratitude I have for you Brian for taking this on and publicising these problems to a wider audience xxx :angel:

I asked NICE directly about this and they said they didnt have to use WHO categorisation. I didn't have the reason to hand as to why they are supposed to abide by this ( - I think it was something to do with EU law?). So I couldn't challenge them further on it. I will check the email that they...

Someone posted in a comment on Tom Kindlons FB page about his involvement in ongoing research with mus symptoms which would be a coi? - so adding here to keep as much information together as possible ...

i tried to find out who the "others" were by asking directly and then going through the foi process to get all of the minutes from their meetings. Names were redacated in the minutes and i dont think it was clearly documented what was discussed re this. Which i was really surprised about seeing...

I assume they want people that are nearby

Being in the NHS shouldnt be a prerequisite for being on the committee - they don't have any special training that makes them more knowledgeable than people not in the NHS. What about allowing researchers in - would they be excluded as well then as they work for universities?

Small post on Brian Hughes blog https://notthesciencebit.net/2018/10/24/forty-one-international-scientists-have-signed-a-declaration-supporting-cochranes-decision-to-withdraw-its-controversial-review-of-exercise-therapy-in-me-cfs/

Sharpe has just tweeted the link to the article - roll on the comments!

Cracking critique!

Merged threads The toxic side effects of therapy: 40% of people experience more distress from cognitive behavioral therapy, 2018 Article in the Daily Mail about a scientific study which criticises use of CBT as a therapy. This is not in relation to ME and I havent read the actual scientific...

Sounds quite wishy washy at the end - I think his train must have been stuck in a tunnel for a few years - everyone else has been getting on board with the biological story - it's only the old steam train enthusiasts that want to stay in the dark ages. I think the reference to looking over the...

It's worth staying aware of how things are being reported - it's a change to the norm that they have said about the problems. So it's good to know about any articles in major publications , whatever they say.

i remember that as well - will kill you!

The main reason is for the DHA and EPA not vit D. My consultant recommended fish oil to me (I cant remember the medical reason at this moment but I think it is in any ME guides on different treatments. ) Fish oils have higher levels which is why they are preferred over things like evening...

It could be used as a question to an MP - to ask whether it is normal for No 10 to make comments on live trials before results are published, and in a way that the response is used to influence participants responses to the trial which is in direct contradiction to how clinical trials should be...

yes they are very manipulative! I don't agree with that version at all, but from the work I have done it was one major issue that I came across. The logical correct definition didn't seem to make any difference and people on the other side of the fence seem able to interpret the definition how...

this might be the "functional" nervous category which a lot of the insurers use Nervous system can be thought of in two ways - if you do a search for nervous system illnesses you will get a lot of mental health ones as well as those of a more biological systemic nature. We on this forum always...