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In response to their joint statement someone should ask them directly why they didn’t make their objections known at the round table that was convened for them for that purpose. It is professionally disgraceful to have gone to the meeting that was put together for them and then not used it for...

It is said that breathing a certain way can stimulate the vagus nerve, in a similar way to micro current devices

“Does Low Dose Naltrexone Improve Natural Killer Cell Functioning in ME/CFS?” https://www.healthrising.org/blog/2021/09/07/ldn-low-dose-naltrexone-chronic-fatigue-syndrome-natural-killer-cell/

Sent mine to Andrea Leadsom

I don’t know if this is of any help or use but I did get copies of all the minutes from the previous guideline group meetings that NICE held. I had a quick search of these documents and there are references to the York review. I have just spent the weekend in hospital though and my head is...

I think there was some confusion and Andy was replying about commenting on the BMJ article, whereas you were asking about the draft guideline

ETA - it could also focus on how the treatments and the misconception that it was a psychological illness meant it was extremely hard for people to claim any type of support. Even though the guidelines are being changed this is still an ongoing issue and will be until the messaging filters down...

On the site there is a link at the bottom to the screening form that they will use and this gives a better idea of the type of symptoms you need to have to qualify

I thought the vivoactive 3 could do that, well I know you can set a maximum heart rate and it buzzes if you go over that (I had to turn it off as it was always buzzing :)). Not sure about the minimum alert. But you don’t need to use a phone to be able to see that. there are a couple of Facebook...

I have the vivoactive 3 and get very similar results. My heart rate can go from about 60 if I am sitting down to 130 just by standing up. I got the watch so that I could use the “stress” function. I had read that you can use this to give an indication of when you need to rest. Ie if you think...

My GP confirmed to me today that I am included in group 6 because of ME/CFS

I am coming too - look forward to meeting you all, maybe we should all wear something so we know we are S4MEers!

I thought the same thing when I saw it in the magazine. There have been a few things in recent issues which I thought were very negligent and if I were a new patient looking for advice some of the things being said are very dangerous. Will try and dig out the other ones that were concerning.

You can get smaller size ones. On amazon there are loads, I like the moldex spark plugs and they do have different sizes.

I think they just put anything to get your business! I would be dubious about the claims of legal expertise as well if I didn’t know that they must have qualifications :)

Don't assume the lawyers are up to speed on things - even those advertising themselves as specialists in the area

By real stuff do you mean the smoking variety or is it an oil from another source?

I get a sore throat and glands too. I had glandular fever when I was younger and had really infected tonsils with it. Since then they have stayed pitted and when I deal like I have a virus they get white discharge and sore, not really hurting but feels like I have a bit of a cold. I am much...

I was prescribed Modafinil for my ME a few years ago. When I started taking it I thought it was wonderful - it enabled me to get through the day without having to keep napping. I did realise that although I was awake it didn't give me any extra energy so I had to be careful not to overdo things...

I think the ME charities should give donations. David has advanced the understanding of ME and made it possible to fight back against the BPS school of thought. Without any of this the charities would still be trying to do this themselves and wouldn't have been nearly as successful (not having a...